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Living with Parkinson's Disease - Meet others & come say hi
Parkinson's Disease | Last Active: Nov 7 3:33pm | Replies (743)Comment receiving replies
Hello, I am Edie. I was diagnosed with Parkinsons on July 26 of this year after spending thousands of dollars with doctors trying to find out why I was blacking out with no warning. I had one syncope where I fell into the bathtub breaking my arm and thumb on opposite arms. All of the mris, stress and cardio test came back clear. I have no one for a support system.
Replies to "Hello, I am Edie. I was diagnosed with Parkinsons on July 26 of this year after..."
Hello @edieteresa, and welcome to the Parkinson's support group on Mayo Connect. It sounds as if you have had a difficult time getting a diagnosis. Many of us with Parkinson's waited for several years before we found the correct diagnosis. How are you feeling now?
Have you begun any treatment yet? I'm thinking of medication or an exercise program? If so, have the treatments been helpful?
I look forward to hearing from you again. Will you post updates as it is convenient?
Hello Edie,
I cannot imagine not having help when you need it. I know you have been through so much already. I will be here if you need to ask any questions. My spouse has Parkinsons. 🫂
You have lots of support here!
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I’m so sorry you don’t have anyone to help you with this, Edie. Since my husband was diagnosed we have discovered local Parkinsons Associations that offer boxing, dancing, etc which all help with balance and have helped him meet others going through the same things. Try a general internet search and ask your neurologist for suggestions. It’s a scary diagnosis but talking to others going through it helps.