diagnosed with Mobile cecum and redundant colon

Posted by marilyns22 @marilyns22, Mar 28, 2025

For several years now I have been experiencing severe pain in my lower right abdomen that only lasts a minute or too and then goes away. Pain is excruciating!! Also chronic diarrhea. Dr. actually told me my CT showing the mobile cecum was "normal" and nothing to worry about. Now Barium enema x-ray shows my intestines are severally stretched and out of place. My Dr. says that is from chronic constipation and to take laxatives. I havent had a hard stool in years.
And I know that severe pain is my intestines twisting. But my Dr. is acting like this is nothing to worry about. First visit he prescribed me Colestipol. Said my diarrhea was because I had my gallbladder removed. Now he is saying take laxatives even though I am still having diarrhea everyday after a normal stool first. So confused and frustrated.

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Have you gotten more info since last post? This is my first post and I'm sorry for what you have been through.
I was looking to see if anyone else had mobile cecum and if they had surgery for it. I've read about cecopexy (where are cecum is surgically attached to where it should be). But I never see the name of a surgeon or what the patient experienced. Did your insurance company ever hear anything from Cleveland Clinic? I didn't know insurance companies would ask for second opinions like that or maybe they were trying to help you be seen at the Cleveland Clinic?
I hope things are better and I really wish you would post an update.
I see online that people got this fixed when they have volvulus (twisting) so surgery is life and death emergency. Whatever the cause of your problem, I hope it is better.

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Still waiting to see surgeon. appointment is May 20th. And havent heard anything back from the Cleveland Clinic yet either. Still diarrhea everyday. Thank you so much for asking!

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I hope you hear something helpful on the 20th. I'm a bit confused if you're waiting to hear from your insurance company or the Cleveland Cl. Maybe someone gave you a time estimate of call? If not, you may want to call them . I've learned the hard way how often get overlooked or lost. Good luck and please post what you learn.

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My wife has mobile cecum and has had Digestive and autoimmune issues all her life. I have come to the conclusion that she has had a raging vitamin B12 deficiency for most of her life and that the mobile seek him creates an environment where the ilium has absorption issues for both bile and vitamin B12 which can both be corrected with supplementation. I would recommend you seriously look into B12 and B9 shots but make sure they are the methylated version and not the man-made version, you want to look for methylcobalamin and methylfolate, and avoid folic acid and cyanocobalamin or hydroxycobalamine as you may not be able to absorb these forms. I'm starting to come to the conclusion that most gallbladder surgeries are unnecessary if the only thing they are resolving is a bile absorption issue which it sounds like the ilium is responsible for. I'm hoping someday to have some concrete criteria to post data but until that time all I have is conjecture and ideas but they seem to be helping my wife. I hope this gives you some form of relief or assistance and good luck to you.

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