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I have been diagnosed with MGUS for 8 to 10 years now, male age 77. Recently had a scare when my hematologist ordered a full body bone scan because my kappa (I think) light chains keep going up. The process involved 31 x-rays of my bones, not fun. He said they would look for bone lesions and if they were found it would likely indicate a progression from MGUS to multiple myeloma. Just got the results this morning and hooray, no sign of lytic bone lesions! What a relief!
Replies to "I have been diagnosed with MGUS for 8 to 10 years now, male age 77. Recently..."
Hi, I was dx. Oct. 24 with MGUS. As of last May my M spike was .08 & I had 1 lambda showing itself. I asked if we could delay the entire body bone X-rays and my Hematologist agreed unless my numbers changed significantly. (I didn’t want the xtra radiation ☢️ yet)
My next blood evaluation is Nov.
As with all of us with MGUS, it’s a waiting game. I was told at my age 68 that I would probably die of something else. Comforting huh?
I have a friend w/MM and she had gone thru terrible things but is still surviving after 12 yrs. My heart goes out to all suffering anything in relation to our diagnosis’s MGUS, SMM or MM. Bless all of us. Perseverance is our motto!
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That's certainly great news! So glad that no lesions were found! Definitely a big relief! Continue well and take gentle care of yourself!