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Newly diagnosed invasive ductal and lobular in right breast

Posted by maggiejinx @maggiejinx, May 29 2:35pm

Hi. I just turned 50. I was recently diagnosed with a 6.1 cm non mass like enhancement which is confirmed invasive ductal and lobular cancer. I see the surgeon on Tuesday to find out the plan. I do believe he will recommend mastectomy due to the size and it is located centrally and under the nipple. I am debating where to have the left breast removed also even though it is not showing any signs of cancer. I don’t want to go flat for emotional reasons and also I am a double D bra size so it would be a huge difference between the sides. But it also makes me sad removing a healthy breast. I am also wondering whether I will need chemo before or after. Has anyone experienced this diagnosis or similar? I should add there is no lymph node involvement.

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dianetich | @dianetich | 17 hours ago

I too (59 yrs) was just diagnosed with Invasive Lobular-Like Mammary Carcinoma and Ductal Carcinoma In-Situ (DCIS) that has spread to at least 2 axilla lymph nodes. Mine feeds off of estrogen so I will be taking 2 estrogen blocking meds for 3-6 months to hopefully shrink the tumors, followed by surgery and then radiation. I heard that radiation is brutal but I will need radiation no matter what. (my cancer is resistant to chemo apparently) I am struggling with deciding between a lumpectomy versus a mastectomy. I was told by the surgeon that there is a 3% chance of it returning in the other breast and with a mastectomy it lowers the chance down to 1%. At first I thought that wasn't enough to warrant a mastectomy but my sister had breast cancer at 44 years of age and now 20 years later it has returned. I know 1% isn't high but someone has to be in that 1% and I don't want it to be me.

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Chris, Volunteer Mentor | @auntieoakley | 14 hours ago
In reply to @dianetich "I too (59 yrs) was just diagnosed with Invasive Lobular-Like Mammary Carcinoma and Ductal Carcinoma In-Situ..." + (show)
@dianetich

I too (59 yrs) was just diagnosed with Invasive Lobular-Like Mammary Carcinoma and Ductal Carcinoma In-Situ (DCIS) that has spread to at least 2 axilla lymph nodes. Mine feeds off of estrogen so I will be taking 2 estrogen blocking meds for 3-6 months to hopefully shrink the tumors, followed by surgery and then radiation. I heard that radiation is brutal but I will need radiation no matter what. (my cancer is resistant to chemo apparently) I am struggling with deciding between a lumpectomy versus a mastectomy. I was told by the surgeon that there is a 3% chance of it returning in the other breast and with a mastectomy it lowers the chance down to 1%. At first I thought that wasn't enough to warrant a mastectomy but my sister had breast cancer at 44 years of age and now 20 years later it has returned. I know 1% isn't high but someone has to be in that 1% and I don't want it to be me.

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I agree wholeheartedly. We each have to decide for ourselves what treatments we are willing to take.
I mentioned on another thread that I was unwilling to take the chance of having to go through all of this again, even if the chance was only 1.6%. In my case, I took every treatment my doctors offered for as long as they offered it, and it still came back and it didn’t wait 20 years.
Kudos to you for trying everything in your power to prevent recurrence.
Did your talkers mention if this dual cancer type increased your risk?

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