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Neuroendocrine Tumors (NETs) | Last Active: 5 hours ago | Replies (9)

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@kevinmonroemi

I had very high tumor burden to both sides of the liver. Primary pancreatic gastrinomas causing very high gastrin 2,000 I started with Lanreotide injections to control symptoms. Had 7 months of Captem no tumor shrinkage! Gastrin was still out of control next was y-90 it wasn’t fun however it worked very well it shrunk most tumors Gastrin level has dropped to 200 been good now for 2-1/2 years let me know if you have any questions. My ki-67 is only 7% your husband is 25% much more aggressive. The y-90 makes sense to me they need to get tumor growth under control asap with something more aggressive where does he go for treatment?

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Replies to "I had very high tumor burden to both sides of the liver. Primary pancreatic gastrinomas causing..."

Thank you for your reply!! He is going to Moores cancer center UCSD.

Thank you. Did you have surgery on the pancreas? Are you nonfuctional? I hope he heals well after the y90. Before the Dr mentioned another drug to use after captem so that is why after the next appt we were surprised about the Y90 suggestion. Also could be because he experienced gastritis etc after the Tem part of Captem.