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Hi @mjlandin, I was just recently diagnosed with Mgus. Found out by accident, had labs for something else and my Rheumatologist informed me that I had a protein in my blood that concerned her. She referred me to a Hematologist who ordered tons of lab work, results showed that I have Mgus. I don't have a clue about Mgus and how it works, what it means, what to do next, etc, etc. All I know is that she wants to check my blood every six months. I need more information on this condition because she really didn't go into detail about symptoms or other things that I should look out for, if I should be concerned or not, so I really don't know what I have. I want to go on YouTube to see if I can learn more about Mgus. Whatever you learn, please share it with us. I would deeply appreciate that!
Replies to "Hi @mjlandin, I was just recently diagnosed with Mgus. Found out by accident, had labs for..."
Do you know what the protein level was? MGUS itself is not concerning as long as your levels stay at the MGUS levels. Checking your blood levels every 3 or 6 mths is the proper thing to do at this point.
I have been diagnosed with MGUS for 8 to 10 years now, male age 77. Recently had a scare when my hematologist ordered a full body bone scan because my kappa (I think) light chains keep going up. The process involved 31 x-rays of my bones, not fun. He said they would look for bone lesions and if they were found it would likely indicate a progression from MGUS to multiple myeloma. Just got the results this morning and hooray, no sign of lytic bone lesions! What a relief!
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@recnacgone5 Welcome to Mayo Clinic Connect! I see that you have been a member since October 2022, and this is your first post!
A very good resource for information is the International Myeloma Foundation myeloma.org, to get insight to MGUS and what it is. As many will explain, they were diagnosed with this condition when doctors were looking for something else.
After you read that website, we'll be happy to answer your questions!
Ginger