Essential tremors: Anyone experiencing shaking?

Posted by lynno7 @lynno7, Feb 13, 2024

Is anyone experiencing shaking due to Essential Tremor?

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Profile picture for dxlawr @dxlawr

I applaud your honesty. Sometimes we just do what we can to cope with the situation.
The little movements we need to make each day can just be so frustrating. I'm not sure alcohol is any better solution, drugs are drugs. Only you can make that choice. I also have my wine each evening and especially when out with others. I have also been questioning this choice, but who knows, right? Hang in there.

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A small dose of propranolol can also be used " AS NEEDED", say 10 or 20 mg or maybe 30. Check with your neuro.

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Profile picture for kvrudney @kvrudney

I've been to 2 different neurologists and offered me parkinson meds but told me the side affects and suggested I wait till my tremors got really bad. There are also combinations of meds they offer that are not for ET but seem to help. I had a friend on them. Not ready for any of that yet. I knew a gentleman that had the voice tremors and did public speaking and he went for speech therapy and it helped him. So you might want to try that. Thanks for your reply and suggestions.

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Suggest you investigate HIFU procedure.

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Profile picture for fisherman06239 @fisherman06239

Don't know what an internal tremor is but I may have. I need to strong sleep medication to get a good nights sleep. With it I am great the next day without it I am rubbish. I believe there are different syndromes of Tremor and a lot of medical ignorance.
My mother had exact thing. She never abused her body in any wat but passed at 88 from cancer.

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CORRECTED PREVIOUS: Don't know what an internal tremor is but I may have one. I need to take strong sleep medication to get a good nights sleep. With it I am great the next day without it I am rubbish. I believe there are different syndromes of Tremor and a lot of medical ignorance.
My mother had exact thing. She never abused her body in any way but passed at 88 from cancer.

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Profile picture for karencodiga1969 @karencodiga1969

I've had essential tremor for years. Diagnosed with generalized myasthenia gravis (Mg) Oct. 2024. Take primidone but it only helps some. Take mestinon for MG and that has made twitching/shaking worse. God bless all of us warriors.

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I'm sorry to hear about your MG with ET. I just found out Mayo had a device called Calla Trio. It looks like a watch you wear on your wrist for an hour that stops the hand tremors for about an hour. I would love to have that when I am going out to eat socially. I am going to look into it. Supposedly Medicare will pay for it with the advantage plan I have. i will post about it if I am approved to get it. Have a nice day.

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Profile picture for kvrudney @kvrudney

I'm sorry to hear about your MG with ET. I just found out Mayo had a device called Calla Trio. It looks like a watch you wear on your wrist for an hour that stops the hand tremors for about an hour. I would love to have that when I am going out to eat socially. I am going to look into it. Supposedly Medicare will pay for it with the advantage plan I have. i will post about it if I am approved to get it. Have a nice day.

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Oh wow. Thanks. I'll try to find out something too. Let me know what you find out. I don't go to restaurants because it's embarrassing. Take care.

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Profile picture for karencodiga1969 @karencodiga1969

Oh wow. Thanks. I'll try to find out something too. Let me know what you find out. I don't go to restaurants because it's embarrassing. Take care.

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I'm going to be away for a week starting this Sat. but will check it out when I get home. If you find anything out let me know also. My health ins rep; said to call Mayo get the code they use for billing and then call my insurance to see if they cover it. He felt they should because my insurance, Aetna Medicare Advantage is connected with Mayo. If you find anything out please let me know also - thanks - Kathy

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Hey there! I’ve been experiencing my bed vibrating when I’m trying to sleep and have even turned off my air conditioner thinking it was shaking my mattress! I’ve had my roommate lay in my bed and of course he felt nothing! Am I losing it? Could this be the start of Parkinson’s Disease? Someone says anxiety but I’m not at all anxious I mean until now…what could it be? Google scares me telling me demons or the house is falling down! Someone have suggestions please???

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Profile picture for kurtkurt1029 @kurtkurt1029

Hey there! I’ve been experiencing my bed vibrating when I’m trying to sleep and have even turned off my air conditioner thinking it was shaking my mattress! I’ve had my roommate lay in my bed and of course he felt nothing! Am I losing it? Could this be the start of Parkinson’s Disease? Someone says anxiety but I’m not at all anxious I mean until now…what could it be? Google scares me telling me demons or the house is falling down! Someone have suggestions please???

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I have recently been officially diagnosed as having essential tremor by a neurologist even though a PCP preliminarily diagnosed mine years ago. It is best to get a medical diagnosis to rule out Parkinsons or something else. You will have more peace of mind with a correct diagnosis and will know how to proceed with treatment. Mine is sporadic and unpredictable as to when it will get really bad as opposed to just being mild. I hate meds so I only take something as needed. As someone mentioned Propanolol helps. A 6 oz glass of red wine has the same benefit, however I rarely use either of those options. If I dwell on it, it becomes worse. I use white noise and deep breathing at bedtime, and I generally sleep well. Sometimes, the simplest solutions are the most effective, but please get a proper diagnosis first.

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Profile picture for kvrudney @kvrudney

I'm sorry to hear about your MG with ET. I just found out Mayo had a device called Calla Trio. It looks like a watch you wear on your wrist for an hour that stops the hand tremors for about an hour. I would love to have that when I am going out to eat socially. I am going to look into it. Supposedly Medicare will pay for it with the advantage plan I have. i will post about it if I am approved to get it. Have a nice day.

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Following.

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Are you on any medication? I know I was on Gabapentin 2800 and was experiencing tremors. I have peripheral neuropathy and vascular migraines. When went off my tremors weren't as bad. Good luck.

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