1. < Kidney & Bladder

Am I wrong to be concerned about my Stage 3a CKD?

Posted by quiltergirl2 @quiltergirl2, May 18 11:34am

My eGFR took a drastic drop from 44 to 36. My doctor seems to be very blasé about. I asked if I needed a Nephrologist, or go on a renal diet, she just says “you’re not there yet”. WHERE?? My father lost a kidney to a renal cell carcinoma, and his sister had nephritis I don’t want to get to that point of losing a kidney or needing dialysis. Am I wrong to be worried? Any opinions out there?

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Mentor
Ginger, Volunteer Mentor | @gingerw | 1 day ago
In reply to @quiltergirl2 "Update on my post. I had an appointment with a nephrologist. She was very encouraging. My..." + (show)
@quiltergirl2

Update on my post. I had an appointment with a nephrologist. She was very encouraging. My kidneys are functioning at 38%, given my age (80 yrs)I could go another 15-20 years. She suggested I see a dietician to assist with a good dietary program. The biggest concern is to watch my sodium intake. My dietician appointment is on the 30th, I’ll keep you posted on what she says. All the last dietician I saw showed me a plate with food distribution on it, I need more, hoping this new one will help with meal planning etc. besides CKD I have non-alcoholic fatty liver so losing weight and proper nutrition is very important!🤞

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@quiltergirl2 That's very encouraging information, don't you agree? As she said, diet is a critical factor in kidney health. Is the appointment on the 30th with a renal dietician?
Ginger

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1 reply
quiltergirl2 | @quiltergirl2 | 1 day ago
In reply to @gingerw "@quiltergirl2 That's very encouraging information, don't you agree? As she said, diet is a critical factor..." + (show)
@gingerw

@quiltergirl2 That's very encouraging information, don't you agree? As she said, diet is a critical factor in kidney health. Is the appointment on the 30th with a renal dietician?
Ginger

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She’s the dietician at the hospital but not sure if she’s a renal dietician. We’ll see when I get there.

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1 reply
Mentor
Ginger, Volunteer Mentor | @gingerw | 12 hours ago
In reply to @quiltergirl2 "She’s the dietician at the hospital but not sure if she’s a renal dietician. We’ll see..." + (show)
@quiltergirl2

She’s the dietician at the hospital but not sure if she’s a renal dietician. We’ll see when I get there.

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@quiltergirl2 A renal dietician is schooled in kidney disease and situations.

https://www.renalnutrition.org/home is a website with a lot of information. You'll see on the top right, there is a link to help you find a renal dietician in your area.
Ginger

REPLY
benazir | @benazir | 8 hours ago

Yeah, I saw the plate! The right dietician can help a lot. It seems I was being a bit too strict in some areas . Keep working and find the right one that will help you strike a balance.. I even went to a going away dinner for a friend and using my phone was able to find a recommended lower sodium offering at Olive Garden (not an easier task).

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1 reply
quiltergirl2 | @quiltergirl2 | 7 hours ago
In reply to @benazir "Yeah, I saw the plate! The right dietician can help a lot. It seems I was..." + (show)
@benazir

Yeah, I saw the plate! The right dietician can help a lot. It seems I was being a bit too strict in some areas . Keep working and find the right one that will help you strike a balance.. I even went to a going away dinner for a friend and using my phone was able to find a recommended lower sodium offering at Olive Garden (not an easier task).

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I know! It’s hard to eat out, so far I’ve been sticking to salads. Looking forward to my appointment on Monday. I will tell her that I want a sample diet NOT
a picture of a plate! She’s the dietician at the hospital so I am expecting more from her🤞

REPLY
benazir | @benazir | 6 hours ago

I don't know where you live but I can recommend someeone if you are sill not clear after your meeting. During the pandamic we meet virtually.
https://www.thekidneynutritioncoach.com/
Keep your head up. You can handle this challenge!

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1 reply
quiltergirl2 | @quiltergirl2 | 6 hours ago
In reply to @benazir "I don't know where you live but I can recommend someeone if you are sill not..." + (show)
@benazir

I don't know where you live but I can recommend someeone if you are sill not clear after your meeting. During the pandamic we meet virtually.
https://www.thekidneynutritioncoach.com/
Keep your head up. You can handle this challenge!

Jump to this post

Thank you, I’ll see how my appointment goes and I’ll keep this site just in case.

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