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Sjorgrens and RA

Posted by shinesun2468 @shinesun2468, Jun 10 9:05am

I was diagnosed with Sjorgrens and RA 3 years ago. Over the past year it has gotten worse. I ache like the flu daily and run a low grade fever. My rheumatologist ( my 3rd) only has me on plaquenel. For the past 3 weeks I take 4 ibuprofen and two Tylenol then lay down n a heated blanket and cry until the aches subside. Sjorgrens has gone after my kidneys so I am on medication to protect my kidneys since I have proteinuria. I am at a loss of how to get these aches to stop. And I keep hitting road blocks with all of my doctors. Any advice or any other specialist referral would be much welcomed. I do not know what else to do.

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suetex | @suetex | Jun 23 5:55pm

I would say that it does work, albeit, slowly. My husband says he can tell the difference to my energy levels. However, it is expensive so you need good insurance or Medicare.

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shinesun2468 | @shinesun2468 | Jun 23 6:26pm
In reply to @suetex "I would say that it does work, albeit, slowly. My husband says he can tell the..." + (show)
Profile picture for suetex @suetex

I would say that it does work, albeit, slowly. My husband says he can tell the difference to my energy levels. However, it is expensive so you need good insurance or Medicare.

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I’ve heard it’s expensive. I would def check with my insurance company. I just want the flu like body aches to stop.

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suetex | @suetex | Jun 24 10:32am
In reply to @shinesun2468 "I’ve heard it’s expensive. I would def check with my insurance company. I just want the..." + (show)
Profile picture for shinesun2468 @shinesun2468

I’ve heard it’s expensive. I would def check with my insurance company. I just want the flu like body aches to stop.

Jump to this post

In the meantime, you might ask your rheummy (or dr. you have good communication with) about Low Dose Naltrexone. In my experience it does work for constant pain, just not moving pain . Look it up.

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adlttl123 | @adlttl123 | Jun 25 9:39am
In reply to @suetex "I would say that it does work, albeit, slowly. My husband says he can tell the..." + (show)
Profile picture for suetex @suetex

I would say that it does work, albeit, slowly. My husband says he can tell the difference to my energy levels. However, it is expensive so you need good insurance or Medicare.

Jump to this post

What works?

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