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What a blessing that you found a great support group. I have searched for several years and sadly, family has failed us and even church folks failed us. Oh everyone is smiles and asked the famous question, "how are you" and "be sure to have self care". They mean well and they are human just like we are. Truthfully when you get down to the details how quick the conversation ceases. I have to be careful not to get synical and all i can envsion is the ostrich with head in the sand. It has been such a lonely journey for me. In desparation, i have sought counselling and not much progess there but someone who will listen to me vent. My cat is very supportive and that is most amazing. Keep your chin up. I know what it feels like to drive to starbucks or grocery parking lot and ball my eyes out for release of sadness.
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I hear you have Jbug25.
I also have pulled back from my Church family. I’ve come to the conclusion that if someone has not experienced the daily emotional and physical toll they just can’t understand. They want us to smile and say we are fine. They are comfortable saying silly things like “oh i forget all the time” or “my husband does that”. Which leaves me feeling like im crazy and my loved one may be rude or stubborn instead of demented.
Im pretty isolated now which creates more sadness and unable to make decisions that need to happen.
We want to move to another state next year and oh my is that difficult for me. Sooo many moving pieces and my husband makes it harder because he forgets what the goal is. Even though hes the one pushing to move.
One Dat at a time sweet Jesus!
Ill pray for you and your loved one. Hugs, kathy