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hoosierlarry avatar

Temporal Arteritis

Polymyalgia Rheumatica (PMR) | Last Active: Jun 26 7:15am | Replies (17)

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I agree that you are lucky to get to 15 mg of Prednisone so quickly. It took me 10 years and countless relapses to get to 15 mg of Prednisone. I'm currently doing Actemra infusions every 4 weeks. I was able to discontinue Prednisone 4 years ago. I'm still recovering from side effects from long term Prednisone use. I had many side effects from being treated with long term Prednisone but almost no side effects from long term Actemra.

I know Actemra is being used sooner these days in the USA. However, I think it is still being reserved for "relapsing" and/or "refractory" cases of Temporal Arteritis. Unless you have PMR symptoms and difficulty with Prednisone side effects, maybe Actemra can wait. Problems generally surface at Prednisone doses of 10 mg or less.

It does seem like your doctor is waiting until August. I don't know how long you should wait but the sooner you can get off Prednisone the better.
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oops ... meant this to reply to original poster @hoosierlarry

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Replies to "I agree that you are lucky to get to 15 mg of Prednisone so quickly. It..."

Doctor actually wanted to start the Actemra in July but Blue Cross insisted I be on Prednisone for three months before they would pay. Obviously because Prednisone is cheaper .
I’m have no pain anywhere. I’m actually working out 90 minutes a day on treadmill, elliptical , or spin class.
I’m going to ask doctor on 7/1 appointment is I should taper more on Prednisone to see what happens before starting new drug