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Living with Parkinson's Disease - Meet others & come say hi
Parkinson's Disease | Last Active: 4 hours ago | Replies (733)Comment receiving replies
My husband had back surgery last year. The year before Covid. He has a potential heart problem due to Covid. I was appalled at the Healthcare system. Empathy is not the same. My husband was scared and I could not believe how some of the staff were laughing at him. They kicked him out of the hospital a little over 24 hrs. of his surgery. He had an altered mental status. But Utilasation Review decided he could go home. The physician wanted him to stay longer. So because of the medical decision they made he did not qualify for inpt. rehab. That night it took me 2.5 hrs. to get him of the floor. He did not fall. He was so confused.I had to reduce his pain medication in half. His back is fine now. He has cancer. It seems everytime we go to the Dr. they give him a new diagnosis. The ER usually keeps u for at least 27-30 hrs. before a bed opens. Crazy world we live in. Be careful as people with Parkinsons do not do well with medications. I could tell you more but I think it is hard for you and your family when they see you suffer.
Replies to "My husband had back surgery last year. The year before Covid. He has a potential heart..."
Sometimes my husband falls as he is so weak using his walker. I have to stand with him as he walks. When he falls i call our local fire dept and ask them to give him a "lift". It is free wher i live in NC. The fire dept is very understanding. Also, we were rushed out of hospital after second trip to emergency room in same day. My husband was weak with covid and they would not test him until second trip and 5 hours later. We got home late in night as they wouldnt admit him to hospital. I was so exhausted and we got home and he fell for second time and fire dept came and placed him in bed..My husband is 74 years old. So keep in mind the fire dept when your loved one cant get up from the floor. Kind regards
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I can certainly understand what you and your husband went through. The altered mental state was my new reality. I thought I was in prison with a death sentence. I was so scared. The meds are so powerful that they can create this. I bow to the people who helped me through. My son spoke with me on the phone while they were giving me the new drug. The nurse was calling me her friend and holding my hand. A very humbling experience. Only minutes before I was searching my room for hidden cameras. Anyway I am mostly back in the real world again. Thank you for sharing