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Living with Parkinson's Disease - Meet others & come say hi
Parkinson's Disease | Last Active: 4 hours ago | Replies (733)Comment receiving replies
Yes it was tough. But I was lucky as well in lots of ways. It is a shame about your spouse, but it sounds like you are doing a great job adapting as best as you can. I have been using an electric wheelchair for a long time now due to a chronic back problem as well as PD. I try to make sure that we think about how we can adapt to do the things we want to do. Most times there is a way. Take care. The hallucinations were the worst thing i have ever experienced. I was scared witless as the alternate world became my reality for a few days. But my family got me through it.
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My husband had back surgery last year. The year before Covid. He has a potential heart problem due to Covid. I was appalled at the Healthcare system. Empathy is not the same. My husband was scared and I could not believe how some of the staff were laughing at him. They kicked him out of the hospital a little over 24 hrs. of his surgery. He had an altered mental status. But Utilasation Review decided he could go home. The physician wanted him to stay longer. So because of the medical decision they made he did not qualify for inpt. rehab. That night it took me 2.5 hrs. to get him of the floor. He did not fall. He was so confused.I had to reduce his pain medication in half. His back is fine now. He has cancer. It seems everytime we go to the Dr. they give him a new diagnosis. The ER usually keeps u for at least 27-30 hrs. before a bed opens. Crazy world we live in. Be careful as people with Parkinsons do not do well with medications. I could tell you more but I think it is hard for you and your family when they see you suffer.