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Profile picture for tony42miles @tony42miles

Thank you. I think I had PD for longer, but the official diagnosis took a long time.

I was recently prescribed Entacopan to smooth out off times. I had what I thought was a major side effect. Ended up in hospital. They found I had pulminary embolysm. That was treated then something went wrong with another drug I am taking, Rasagiline. Somehow I ended up with halusinations and parnoia. A bit scary. But home now. Encapatone changed to Opicopan, and been weened off Rasagiline.

Sorry about spelling

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Replies to "Thank you. I think I had PD for longer, but the official diagnosis took a long..."

I am so sorry. You don't have to apologize. You are lucky to have not had a terrible reaction to your embolism that was permanent. My spouse went to a Movement Disorder Neurologist. He prescribed a medication that would make him drowsy. Plus the cost was outrageous. He starts PT and Speech Therapy. He has quit every PT that has been ordered. I do not expect anything different.He has a paralyzed vocal cord which makes it difficult to clear mucous. I can't wait to see how he stays for the appointments. I have taught him how to get out of bed, chair..He does pretty well for now. He is not handling some of the things he cannot remember. I just show him again. He is able to still be apart of life. It is the falling and dizziness that makes it rough. He is a trooper and does make me laugh and sometimes he is not nice. But I am fine and I get through it. My point in this is be careful. Make sure you are safe. God bless you and your family.