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Colleen Young, Connect Director avatar

Living with Parkinson's Disease - Meet others & come say hi

Parkinson's Disease | Last Active: Nov 7 3:33pm | Replies (743)
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Hello Tony,
I hope you are feeling a little better. My spouse has Parkinsons and has had it since 2013, but was misdiagnosed. He was officially diagnosed in 2018. It was not a disease we thought he would ever have. My Dad died 12 days before from complications from his Parkinsons. I cannot do anything to change it ..but I am so glad that I found this site. It is a hard battle. Hugs and prayers to you and your family.

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Replies to "Hello Tony, I hope you are feeling a little better. My spouse has Parkinsons and has..."
tony42miles | @tony42miles | Jun 22 2:57pm

Thank you. I think I had PD for longer, but the official diagnosis took a long time.

I was recently prescribed Entacopan to smooth out off times. I had what I thought was a major side effect. Ended up in hospital. They found I had pulminary embolysm. That was treated then something went wrong with another drug I am taking, Rasagiline. Somehow I ended up with halusinations and parnoia. A bit scary. But home now. Encapatone changed to Opicopan, and been weened off Rasagiline.

Sorry about spelling

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