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High or Fluctuating Chromogranin A Level: What does it mean?

Neuroendocrine Tumors (NETs) | Last Active: Jun 30 8:21pm | Replies (208)
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Profile picture for sydmiller1 @sydmiller1

I hope you get answers soon. As someone who recently had a lung NET I know the waiting can be very hard. I leaned into my faith and that helped me. Continue to advocate for yourself.

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Replies to "I hope you get answers soon. As someone who recently had a lung NET I know..."
Teresa, Volunteer Mentor | @hopeful33250 | Jun 23 11:08am

Hello @sydmiller1 and welcome to the NETs support group on Mayo Connect. It appears from your post that you have recently been diagnosed with a lung NET? Were you having symptoms that led to the discovery of the lung NET?

I invite you to meet some of the members of Connect who have posted about lung NETs. Here is the link to many of those posts :
https://connect.mayoclinic.org/group/neuroendocrine-tumors-nets/?search=Lung#discussion-listview
I would also like to invite @californiazebra to this discussion since she has been dealing with lung NETs for many years,

Have you begun any treatments yet, such as monthly injections or surgery?

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