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Living with Parkinson's Disease - Meet others & come say hi
Parkinson's Disease | Last Active: 4 hours ago | Replies (733)Comment receiving replies
Hi my name is Tony. I was diagnosed with PD in 2017. I am on loads of meds now. Just been in Hospital. Not a good experience for me and my family. But home now, and changing meds.
Replies to "Hi my name is Tony. I was diagnosed with PD in 2017. I am on loads..."
Hello @tony42miles and welcome to the PD support group on Mayo Connect. I see that @sillyblone has already replied to many of your posts and has offered some personal experience about her husband's PD. Hospital experiences for PD patients require a lot of diligence on the part of the patient, and if the patient is not able to be diligent (especially after surgery) you need to have a caregiver by your side to be sure that your needs for medications and movement are being addressed.
Here are some important guidelines, from the Parkinson's Foundation, for hospitalization if you have PD:
https://www.parkinson.org/resources-support/hospital-safety-guide
You can order the safety guide or download it for future reference. Getting your medications on time is very important. Also, being up and moving is necessary to deal with the stiffness that can occur during hospitalizations.
How are you doing now, Tony? What are the most difficult symptoms you are dealing with?
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Hello Tony,
I hope you are feeling a little better. My spouse has Parkinsons and has had it since 2013, but was misdiagnosed. He was officially diagnosed in 2018. It was not a disease we thought he would ever have. My Dad died 12 days before from complications from his Parkinsons. I cannot do anything to change it ..but I am so glad that I found this site. It is a hard battle. Hugs and prayers to you and your family.