How much time do you spend managing bronchiectasis?

I'm less concerned about the Aerobika than I am the Vortex chamber (can't boil it) and nebulizer - apparently Monaghan uses a special plastic that doesn't harbor NTM. But I do brush it out because once in a while I cough into it as I am blowing...

Hi, Sue.
I bought the Vortex specifically as it can go in the bottle sterilizer, unlike other spacers. But the Pari info here also says it can be boiled, in case that is helpful:
https://www.pari.com/int/blog/spacer-inhalation-cleaning/

Thank you, Roz,

I appreciate the information. I will give her a call. Not sure yet if I will do zoom or in person?

Kathy

I don't use a Pari, but I do boil my nebulizers - just a cheapo reusable from the medical supply. After 8-10 sessions boiling, I usually toss. Or I will take the old ones (boiled) along on a trip, use and wash each for a couple days, then toss. It is easier than trying to disinfect along the way unless we are in our camper, where I am set up to do it easily.
I know the vortex tube can be boiled, but I have had bad luck with the internal silicone flap thingie closing right after doing it.

Ditto your comment.

Right now it's only Zoom since she's in Washington state for the summer. I'm not sure if she continues Zoom once she gets back to Arizona. She'll tell you. Do you live in Arizona?

Roz

Im not sure if she continues with Zoom once she's back in Arizona where she teaches in a studio. Obviously, she'll tell you.

Where do you live?

Roz

Hey Sue, I have to ask this question to you because I do value your knowledge and excellent ideas, can all nebulizers be sterilized using a good quality baby bottle sterilizer??? I’ve heard some people say yes, and some say no. Dr.’s, RRT’s RN’s etc what is your opinion

Hi Sue,
Thanks for this response and for all your responses which have been very educational for me.
I am planning to talk to the office tomorrow and to ask for another sputum culture. The first one was about five months ago and grew nothing. Hence, I have not been diagnosed with MAC/NTM. Actually, pretty frightened about that. Sounds like many people do convert. When I asked my pulmonologist what my prognosis was, she said Very Good. Maybe it's because I am so old already that the time for it to develop is lessened. At my age there is a lot of other stuff going on with my body.
I am flying to the Bay Area in two weeks, the first time I have traveled with the BE diagnosis. I'll be staying with my daughter. I did get my latest Covid vaccine about a month ago. My family knows I have something but have not shown much curiosity about it. My oldest son who was the glue for the family died almost a year and a half ago. It has changed my inner life unimaginably.
I am very active and will keep walking if it is loosening the mucus. I would keep walking anyway. It's what I've done for about 45 years.
I can't believe I wrote so much. Thanks for your wisdom.
Roz

Hi Roz, did you get my private message? Yes, I'm in Scottsdale, where are you?
Kathy