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Anyone familiar with the clinical trial RMC-6236? Or how to enroll?
Pancreatic Cancer | Last Active: Jun 24 12:39pm | Replies (58)Comment receiving replies
@mnewland99
Marie I'm so sorry to hear of your problems! Can you look into getting on an RMC-6236 trial? It is systemic and all my doctors are recommending it. Do you know what kind of KRAS G12 mutation you have?
Replies to "@mnewland99 Marie I'm so sorry to hear of your problems! Can you look into getting on..."
@mnewland99
I am so disappointed to hear how Naliri has affected you.
You called it! Breathing problems.
I just took one week off to visit grandchild in California. My CA19-9 went from 63 to 100. However, the side effects this week have been minimal except some fatigue! I’m on day 5. Was able to work this weekend (I’m in real estate) and attended two social events in the evenings.
I think this disease is so systemic that we cannot let up the gas. Histotripsy and SBRT are more for interval tumor death of metastases and buy us time until the next thing.
I would be demanding to get back on what worked initially. Especially if there has been a long interval since doing it.
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KRAS 12D, but I think it's the ATM (VUS) that's causing the aggressive behavior. I just live the input @stageivsurvivor gave about stage2 versus stage 3. I didn't even know you could get a stage 2 trial, if stage 3 is going on; doesnt make sense to me.