← Return to open-minded approach to investigate underrecognized or rare causes

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@wesleym

Mayo is state of the art. But a number of other places are also state of the art. For multiple reasons, it's pretty meaningless to say that any one of them stands out for all purposes. First of all, "cancer" isn't one disease. It's a collection of hundreds of distinct diseases characterized by uncontrolled cellular growth with the potential to spread. "Blood cancer" itself - the subject of this group - consists of different diseases. Lots of institutions conduct clinical trials on diagnosis and treatment of various cancers, all of which can result in "papers that other doctors read and study". Lots of places have physicians just as able as those at Mayo. Large teaching institutions have the advantage of internal cross-pollination - the ability of one physician to easily consult with others in the same or related fields (I love the phrase "tumor board"). That's an obvious plus.

So does it make sense for someone with the diseases discussed here to seek out a large teaching institution with group(s) that specialize in blood cancers? Sure. Mayo in particular? Yes, if you live near Rochester, Jacksonville or Phoenix - or if you live somewhere that doesn't have convenient access of one of those large teaching institutions with group(s) that specialize in blood cancers - Mayo should surely be in the differential of institutions. Otherwise, there are advantages - medical as well as non-medical - to being treated close to home.

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Replies to "Mayo is state of the art. But a number of other places are also state of..."

I live in Houston near the Texas Medical Center. As you may know, TMC is home to MD Anderson, Methodist, Baylor College of Medicine, etc.
When I was first diagnosed with MDS last March, I asked my Dr at the time if I should go to MDA. She said ‘well you can call them, but I have someone who can see you much sooner at Methodist.’ So I went with
her recommendation & began my treatment with a hematologist at Methodist. I was seen the same week & am happy with my Dr.
I did call MDA to try & get a second opinion simply bc I felt pressure to do so. Over a month went by & I never heard back from them. MDA is an excellent facility. But it is very large, & sometimes you don’t always have the time to wait around for an appointment while they try & figure things out. I have a friend who works there who said she could ‘help me get in’. But by that time, I’d already started treatment with my Methodist team.
I feel God has guided me to where I need to be.