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DiscussionLiving with MDS (Myelodyplastic Syndromes)
Blood Cancers & Disorders | Last Active: 4 hours ago | Replies (188)Comment receiving replies
Replies to "Hi Pat -- It took about a year for the hematologist to cement in an MDS..."
This - and others who have posted similar - is quite helpful as it seems am beginning to head down this path. 6 months into bloodwork to figure out what / why I was not feeling myself last fall while training for another 50k trail race and legs feeling like ice on the inside.
Initial discovery was Leukopenia along with known slight anemia (known for some endurance runners) in January.
Six months in and latest results are WBC's have recovered a little bit though still 3.8, RBC 4.0, Hgb 12.3, HCT 38, and PLT Ct has been on the decline though still normal from 288 down to 239.
Hematologist has said she is suspecting MDS now that other things have been eliminated. Next round of bloodwork in Aug and she said plainly if Hgb goes below 12 it'll be time to do a marrow test.
I'm starting to experiment with sound waves btwn 10 - 90 MHz listening to these in headphones and then also placing on my legs. Worth a shot!
Anyway, I am blessed to have found this forum and is amazing to read these experiences / what folks go through and the resilience found in many words.
Cheers
Thank you for this information I really appreciate your comments!