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Does anyone else have MGUS?

Blood Cancers & Disorders | Last Active: Nov 4 6:28pm | Replies (1110)

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Profile picture for 2121 @leslie2121

Hello!
I don’t know the effect on my FLCs - they have increased slightly but the M-spike has remained “not clearly identified “. I am lambda elevated w kappa with in normal range & still wnl ratio.
I worried it would affect it all but didn’t think I could risk rabies as it’s almost 100% fatal.

I am hoping it stays “dormant “. On yearly labs & appointments now. Doctor doesn’t think the FLCs are related to mgus but maybe autoimmune? Nothing appears active currently so not going to go digging as I am 66 and living my life!
Good luck to you! 😊

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Replies to "Hello! I don’t know the effect on my FLCs - they have increased slightly but the..."

Thank you so much @leslie2121 for replying! So your experience was that FLCs went up slightly after the shot and didn't come back down even after multiple months?

Mine is a light chain only MGUS, so FLC is the main issue.

In your case it was a dog in a foreign country so you absolutely made the right call.

Mine is a scratch from a squirrel so they doctors aren't really pushing the rabies shot, they're letting me decide either way. Squirrels are considered a very low risk for rabies. But I wanted to see if it would flare the MGUS since it's 4 shots and IG to decide if that risk was worth it.

What a choice - rabies or myeloma! 🙂