AML successful treatment
Happy New Year! I want to share a happy treatment update for my wonderful response to Venetoclax and Dacogen (similar to Vidaza) for treatment of my AML. When I was diagnosed 3 years ago I was considered too old for transplant at age 78 here at the Mayo Clinic. I went into remission after my first cycle of treatment and have now stayed in remission for 3 years. My treatment has been ongoing and my team here has tweaked my routine several times to reduce side effects. Currently I am on a 5 week cycle of Venetoclax for 7 days at the same time I get Dacogen infusions for 3 days (recently reduced from 5 days). I will continue on some treatment routine as long as it is working. In the meantime I am enjoying a full life with family and friends although still taking precautions (weekly blood draws, avoiding folks with colds, etc.) .
I have learned a great deal throughout this period, including the variability of patient responses that can occur due to so many factors (genetics, other health conditions, etc.). I have also learned that there is at least one other patient here who is closing in on 5 years of remission with a similar routine! I am sharing my story to encourage you and wish all of you good outcomes as you face your treatment challenges.
Linda
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Hi @agh83, As we age, our bodies really can become much less tolerant to drugs, as I found out myself. Our metabolism slows down and our kidneys and liver aren’t able to eliminate the waste as quickly, along with other factors.
So I’m glad your doctor is working with you to find that sweet spot! Hopefully you find the right compromise and start seeing your important blood numbers to get back to norma-ish again. But the good news is you had no signs of leukemic cells on your last biopsy! That’s awesome!
Sharing stories like this is so helpful to other folks going through a similar experience. So I hope you’ll keep us in the loop on how you’re feeling and if the lower dosages are working for you, ok? Hugs!
Your hematologist oncologist would be the person to set the dosages for you with these meds. Didn’t I read in an earlier post that you were taking Vidaza?
Yes....5 day with two injections then off for 28 days....take oral pill everyday 100mg.....just wanted to know what others take.....