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Living with MDS (Myelodyplastic Syndromes)
Blood Cancers & Disorders | Last Active: 3 hours ago | Replies (187)Comment receiving replies
Is Rachel on any kind of treatment/chemotherapy?
Reason I’m asking is that I was diagnosed with MDS in March. I’m being treated with Dacogen. I was hospitalized with a blood infection in April. Man, my white cell count dropped so low.
It stayed low until my Dr dialed the Dacogen back, allowing my body to recuperate and bring my white count up on my own in between treatments . Last week my absolute neutrophil count was 1450 - ‘almost’ normal. I was so happy. But then yesterday I had bloodwork done & it had dropped to just over 500. I was very upset; I’m trying to do all the healthy things but it’s the Dacogen wiping out the good, the bad & the ugly.
Did Rachel get anything in the hospital for the low white count?
Replies to "Is Rachel on any kind of treatment/chemotherapy? Reason I’m asking is that I was diagnosed with..."
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Hi Drawl - Rachel is taking Retacrit treatment only at this time. It seems to be helping the hemoglobin, but the neutrophils are still way, way down around 100. She took a Filgrastim shot in the hospital which brought the neutrophils up momentarily, but they crashed back down almost immediately. Right away after the Filgrastim shot, Rachel had a very painful experience as the drug messed with her bone marrow. The nurses said this happens quite often with Filgrastim (also called Neupogen).