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Down to 1mg prednisone and then extreme fatigue sets in.
Polymyalgia Rheumatica (PMR) | Last Active: 22 hours ago | Replies (37)Comment receiving replies
I’m on the same taper schedule as you and also on Actemra 1 per month. Next week I’ll be down to 1 mg and after 3 weeks - off prednisone totally. I’m experiencing pain in the AM, brain fog and fatigue all day. I won’t go back. My Doc said I need to tough it out and feel’s that after withdrawal, Actemra will pick up the slack. Fingers crossed. 🙏
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"My Doc said I need to tough it out and feel’s that after withdrawal, Actemra will pick up the slack."
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Interesting way to phrase it but I would agree. It mirrors my experience when I tapered off prednisone with Actemra. My only suggestion might be an a.m. cortisol level prior to discontinuing prednisone. The a.m. cortisol level might be optional if you aren't having symptoms of a low cortisol level.