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Living with MDS (Myelodyplastic Syndromes)

Blood Cancers & Disorders | Last Active: 4 hours ago | Replies (187)
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@statmatics

For you experts: We see the hematologist on Monday and I have some questions for him. We have been tracking my wife's CBC numbers for 18 months. She developed a stomach ulcer which led to sepsis which crashed her into the hospital in February 2025.

The graphs show her hemoglobin and absolute neutrophils over the past 18 months.

The hemoglobin is responding nicely to retacrit shots and blood transfusions. Thank God.

But look at Rachel's neutrophils. They have always been super low, even when the hemoglobin was normal back in January 2024. However, something in the hospital sent the neutrophils upward, almost to normal. After the hospital, they returned to super low. What do you think is going on?

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Replies to "For you experts: We see the hematologist on Monday and I have some questions for him...."
drawlings0803 | @drawlings0803 | Jun 21 10:38am

Is Rachel on any kind of treatment/chemotherapy?
Reason I’m asking is that I was diagnosed with MDS in March. I’m being treated with Dacogen. I was hospitalized with a blood infection in April. Man, my white cell count dropped so low.
It stayed low until my Dr dialed the Dacogen back, allowing my body to recuperate and bring my white count up on my own in between treatments . Last week my absolute neutrophil count was 1450 - ‘almost’ normal. I was so happy. But then yesterday I had bloodwork done & it had dropped to just over 500. I was very upset; I’m trying to do all the healthy things but it’s the Dacogen wiping out the good, the bad & the ugly.
Did Rachel get anything in the hospital for the low white count?

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