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jenrico avatar

Diagnosed with AL Amyloidosis. What can I expect?

Blood Cancers & Disorders | Last Active: Jun 28 11:19am | Replies (53)
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Thank you. I do have anemia because of multiple myeloma. Iron is ok. I do take b12. I have al amblydosis which has compromised my heart’s dystolic function

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dandgk721 | @dandgk721 | Jun 21 9:54am

Understand as amyloids have affected my husbands heart as well to point he needs heart transplant for which he does not qualify. Three things can have helped us
1. stop and rest..
2. Try sitting in "tripod" position...put your hands on legs and bend at the waist...this will help expell air better
3. Try "purse" breathing....https://www.youtube.com/watch
Ive attached a video from the American Lung Association to show how to do this and why it works.

My husband does have sleep apnea which also causes issues with oxygenation. Our pulmonary specialists recommended cpap or bipap at night which can help with oxygenation during the day

Prayers for peace and understanding for answers on your journey.

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