Hashimotos Disease?

Posted by lluth412 @lluth412, May 23 8:10am

Hi all,

I am normally in the lung health group as I have CEP, a rare lung disease caused by eosinophils. I also have adult onset asthma and sinusitis. I saw a functional medicine Dr last month to see if there are other ways to be healthier and manage my disease. The blood work she did showed my Thyroid Peroxidase TPO at 396 so very high. My TSH is normal and my T3 Free is borderline normal (2.3) as is Free T4 (1.01). I’ve been on prednisone for over a year but in a low dose currently. The functional Dr is very expensive since it’s not covered by insurance. Do I need to send these results to my GP for a referral to an endocrinologist? As background I had Graves’ disease in my 40’s but managed it through diet and meds and I’ve been in remission for almost 15 years without meds.

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@dlydailyhope

@lluth412
I am a 55 year old female and have Hashimoto’s and hypothyroidism and take 100 mcg levothyroxine. Hashimoto’s is known to cause nodule growth in your thyroid so if you get bloodwork testing by your primary doctor, endocrinologist or rheumatologist with a full thyroid panel (TSH, T4, T3, TPO) and it shows Hashimoto’s TPO autoantibodies, it would be good to get a thyroid ultrasound to see if you have changes like nodule growth. I had a 2.5 cm nodule in my right lobe and I had it removed because it was suspicious (determined by fine needle aspiration and molecular testing) and my sister had thyroid cancer. It was benign but they did find a micro cancer.

Hashimoto’s really isn’t treated except for dealing with any nodules and if there is hypothyroidism or hyperthyroidism. Medication would be prescribed of thyroid levels are too high or too low.

It is good to see a nutritionist/dietitian to look at diet and supplements and see if changes would be helpful. You may benefit from a diet that reduces inflammation.

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I have commented on this discussion before, but I want to tell you that I agree with you. I have recently been diagnosed with Hashimoto’s and Hypothyhroidism. I now take 75 mcg of Synthroid to control my Hypothyroidism and have eliminated eating gluten, dairy and soy from my diet due to Hashimoto’s. It has been a life saver for me. I no longer carry so much bloat and inflammation in my body due to this diet. It does work!

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I also have Hashimoto’s and have commented on this discussion before. Your TPO Antibodies are high, (Hashimoto’s). I have eliminated foods from my diet that directly affect Hashimoto’s: Gluten, Dairy and Soy. I’ve eliminated those 3 foods from my diet and have pretty much healed it and my TPO numbers are now in the 80’s. It’s a simple fix if you can handle not eating those 3 things. I’ve been doing it now for almost 3 years. I also lost my taste/smell with Covid Vaccine about 3 years ago now. A book written by Isabella Wentz, M.D. is very helpful with Hashimoto’s Disease if you’d like to read it. Good luck!

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@lkirnbauer

I have commented on this discussion before, but I want to tell you that I agree with you. I have recently been diagnosed with Hashimoto’s and Hypothyhroidism. I now take 75 mcg of Synthroid to control my Hypothyroidism and have eliminated eating gluten, dairy and soy from my diet due to Hashimoto’s. It has been a life saver for me. I no longer carry so much bloat and inflammation in my body due to this diet. It does work!

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@lkirnbauer
I really should try a gluten/dairy free diet like you suggested. I do have lots of bloating and eat lots of dairy and gluten in my diet (not as much soy but need to check ingredients). Thank you! 🙂

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Although anyone can develop Hashimoto's disease, it's most common among middle-aged women. The primary treatment is thyroid hormone replacement.

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@fergie01

Although anyone can develop Hashimoto's disease, it's most common among middle-aged women. The primary treatment is thyroid hormone replacement.

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I’ve been told that medication will not control Hashimoto’s disease, only through diet. Eliminating Gluten, Dairy and Soy are the top causing foods that cause inflammation with Hashimoto’s. By eliminating them, I was able to get mine under better control. I was testing at 600 and now I’m in the 80’s, much better, but still have some symptoms. I dropped my numbers by diet alone, but I do also take Synthroid 75 mcg for my Hypothyroidism. There is a great book by Isabella Wentz, M.D. on the root causes of Hashimoto’s. Get it and do it! Good luck! By the way, I am not getting kick backs from referring her book, I just know it works.

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@dlydailyhope

@lkirnbauer
I really should try a gluten/dairy free diet like you suggested. I do have lots of bloating and eat lots of dairy and gluten in my diet (not as much soy but need to check ingredients). Thank you! 🙂

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You’ll be amazed! Good luck! FYI: Soy is in a lot of things, please read labels. I found it in Good Season’s Italian Dressing packets. Soy and wheat!

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@lkirnbauer

You’re on Synthroid to control Hashimoto’s? Never heard of that before. I take Synthroid to control my Hypothyroidism. I also have Hashimoto’s and there is no medication that will control that, only food elimination. Who put you on Synthroid for Hashimoto’s? You shouldn’t be on Synthroid if you don’t have a thyroid condition.

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ikirnbauer@lkirnbauer. I have no idea where you came by your information. As a medical provider, I hope to correct your knowledge. Hypothyroidism is caused by several medical conditions; one of which is Hashimotos. The medical term is Hashimotos Thryoiditis which is an autoimmune disorder. When a thryroid gland is not able to produce sufficient thyroid hormone, Synthroid or a generic derivative of Synthroid is needed to replace the missing hormone.

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Thank you for your response, but as a medical provider, you should know then that you can also have Hashimoto’s without Hypo or Hyperthyroidism. That is why I responded the way I did. I thought the person had only Hashimoto’s and I was told by my endocrinologist that there is not a medication to control Hashimoto’s, but you can control it with diet, which I have.

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@lkirnbauer

You’re on Synthroid to control Hashimoto’s? Never heard of that before. I take Synthroid to control my Hypothyroidism. I also have Hashimoto’s and there is no medication that will control that, only food elimination. Who put you on Synthroid for Hashimoto’s? You shouldn’t be on Synthroid if you don’t have a thyroid condition.

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Ikirnbauer, I understand your concern. Hashimoto's Thyroiditis has not gone into Hypothyroidism yet and you are correct. My inflammation level was very high and my symptoms were severe. I was put on 3 different Thyroid Medicines (Including Synthroid) due to my symptoms being so severe (not all at the same time!). I couldn't tolerate any of them and so now I am not on anything for it.....I also have subclinical Hyperthyroidism and I am on Methimazole for that. Some doctors do treat the symptoms for Hashitmoto's with medication....depending on the severity.

I get checked every 3 months with bloodwork and then see the doctor and get an ultrasound
of my thyroid once a year. I have an enlarged thyroid.

I hope you are doing well on Synthroid and your Hashimoto's is under control with diet.

Bless you.....Blessings & Prayers....

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@lkirnbauer

Thank you for your response, but as a medical provider, you should know then that you can also have Hashimoto’s without Hypo or Hyperthyroidism. That is why I responded the way I did. I thought the person had only Hashimoto’s and I was told by my endocrinologist that there is not a medication to control Hashimoto’s, but you can control it with diet, which I have.

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Your Endocrinologist is correct. There is no medication to control Hashimotos because it is an autoimmune disorder. An autoimmune disorder is when the body goes beserk and attacks itself. However, hypothyroidism caused by Hasimotos can be treated with synthroid or other thyroid replacement hormones. It is highly unusual for the thyroid gland to NOT be affected by Hashimotos as it primarily affects the thyroid gland. Anything that you can do dietary wise to reduce the inflammatory response within the body is helpful, be that food choices, stress, rest, sleep, etc.

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