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Down to 1mg prednisone and then extreme fatigue sets in.
Polymyalgia Rheumatica (PMR) | Last Active: 19 hours ago | Replies (37)Comment receiving replies
That's a very fast prednisone taper you've done - five months to reduce from 35mg prednisone to 1mg is most unusual. I'm surprised the pain didn't return sooner at a higher dose. Prednisone withdrawal can cause pain that can be indistinguishable from the PMR pain. Did your doctor order such an unusually fast taper?
Replies to "That's a very fast prednisone taper you've done - five months to reduce from 35mg prednisone..."
My Dr also said Pred withdrawal can cause similar pain. I’m down to 2mg and will drop to 1 mg in one more week. I’m in a lot of pain and fatigue with brain fog too. I’m going to soldier thru until I’m off it and beyond. I’ll remain on Actemra infusions until they can make up for not taking P. In some ways the Prednisone is worse than PMR.
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Tapering off, 1 mg every three weeks, was the advice of my doctor. I now have an appointment with him next week. I upped my dose to 3mg and am beginning to feel less pain. If I have to stay on that, so be it. There is a waiting list of a year before I can see a rheumatologist.