Hi Stephie. This has to be incredibly frustrating for you and I sure hope you’re able to get some answers soon.

If you’re not able to travel to a Mayo Campus, there are number of health facilities in the Mayo Clinic Care Network and hopefully one may be closer for you than Mayo itself. The medical facilities in this network meet the standard for quality of care set about by Mayo Clinic.

Here’s a link to the map of clinics affiliated with the program:
https://www.mayoclinic.org/about-mayo-clinic/care-network/network-members
I know it can be inconvenient and costly to travel. But when you have a complicated medical case, where you’ve exhausted local options in an effort to find treatment or at least a firm diagnosis, it might be worth considering a trip to Mayo. The closest to you looks like Jacksonville.
Would you be able to have someone go with you to watch your son if you traveled?

Good Day Stephiebush, I would highly recommend that you make a call to Mayo.; Then have all your medial records sent to the doctor or department for them for review and then make every effort you possibly can to meet with them. I travel from Charlotte, NC to Jacksonville Florida and do not regret for one moment that I do. These are the finest doctors, nurses and staff from around the world that are there to really help you! They are the ones that write the papers that other doctors read and study. You deserve the very best as does your 8yr old child not seeing you suffer. God Bless and give you all you need in order to heal. Daniel