there is no hope for me

Don't wish you were dead. You can be of great help and encouragement to others going through the same problems. I am chemically sensitive and very sensitive to mold (also have Hashimoto's disease) and also gave birth to a child with a lot of allergies. Getting lots of sleep and natural sweating in the son is good for me. I cleaned up my residence (such as got rid of carpets/put in hardwoods, put wooden plantation shutters in most rooms instead of drapes, within reason went organic/organic bed covers and sheets. I also put in a good air-conditioning system with the best air filters and kept the windows shut in my kids rooms to keep out pollens. I think my whole family benefited too. I cringe whenever I see lots of chemtrails in the sky because what is up will come down and this is just one more exposure. I make it quick when I shop at stores and malls because of fabrics and other items "gassing off". I think it would kill me if I had to live in a mobil home because of the gassing off of particleboards/plastics. Susan

For long term covid: take 500 mg of lysine twice a day PLUS 12.5 mg iodine (Ioderol brand) once a day. When you feel better, take the lysine/iodine combo for three more weeks to put the virus in remission. Also buy some Vicks vapo rub and occasionally sniff/it smell for a couple of seconds several times a day in hope that the smell receptors welcome back This may take a couple of months. Been there, done that. Susan

Thank you! I do!! You have to be really be careful!!

I am curious about the Lysine and Iodine mix. I have had LC for 3 years. Did you have it and was this what helped? I am going to do some research on these. I am always looking for relief from this. Thank you.

To the person that started this thread, hang in there. All we have is today. I have many symptoms from Long COVID that have been debilitating as well. Tinnitus, chronic fatigue, post-exertion malaise, loss of smell in the mornings, and many other symptoms of other auto immune diseases. I make myself get up each day and tell myself that all I have to do is today. I also started taking medication for depression (which I did not want to do as I have been on them before) but I had to get out of the hopeless hole. Please do not give up. Take it one day at a time. That is all any of us have.

@ariza9110
I really feel for you. It must be hard to navigate the healthcare system when you feel terrible.

Here is what AI responded to your current situation/condition:

“I'm really sorry to hear that you're feeling this way. It sounds like you're going through an incredibly difficult time, and it's understandable to feel overwhelmed when dealing with chronic health issues. While it may seem like there is no hope, it's important to remember that there are people and resources that can help you navigate these challenges.
Here are some suggestions that might help:
Seek Support: Connecting with others who understand what you're going through can be incredibly beneficial. Look for support groups, either in-person or online, where you can share your experiences and learn from others.
Consult Specialists: If you haven't already, consider seeking out specialists who focus on environmental illnesses or chronic fatigue syndrome. They may have insights or treatment options that general practitioners might not be aware of.
Mental Health Support: Chronic illness can take a toll on mental health. Speaking with a mental health professional can provide you with coping strategies and emotional support.
Lifestyle Adjustments: While it may not eliminate your symptoms, some people find relief through lifestyle changes, such as improving their diet, practicing stress management techniques, or engaging in gentle exercise.
Research and Advocacy: While it can be frustrating that there isn't enough research on mold sensitivity, you might consider getting involved in advocacy efforts to raise awareness about this issue. Sometimes, sharing your story can help bring attention to the need for more research and support.
Explore Alternative Therapies: While it's important to be cautious of pseudoscientific treatments, some people find relief through alternative therapies like acupuncture, mindfulness, or yoga. It may be worth exploring these options with a qualified practitioner.
Remember:
You are not alone in this, and there are people who care and want to help. If you're feeling hopeless, please reach out to someone who can provide support, whether it's a friend, family member, or a professional. Your feelings are valid, and it's important to talk about them.”

@ariza9110
Here is some addition AI information about mild exposure:

“If you've been exposed to mold and are experiencing illness, it's important to take steps to address both the exposure and the symptoms. Here are some treatment options and types of healthcare professionals who may be able to help:
Steps to Take After Mold Exposure
Remove Yourself from the Environment: If you suspect mold exposure, the first step is to leave the contaminated area to prevent further exposure.
Consult a Healthcare Professional: Seek medical advice from a healthcare provider who understands mold-related illnesses. This could include:
Primary Care Physicians: They can evaluate your symptoms and refer you to specialists.
Allergists/Immunologists: They can test for mold allergies and provide treatment options.
Environmental Medicine Specialists: These doctors focus on how environmental factors, including mold, affect health.
Pulmonologists: If you have respiratory symptoms, a lung specialist can help assess and treat those issues.
Symptom Management: Treatment may include:
Antihistamines: To relieve allergy symptoms.
Corticosteroids: To reduce inflammation, especially if you have respiratory issues.
Bronchodilators: For asthma-like symptoms.
Nasal Sprays: To alleviate sinus congestion.
Detoxification and Supportive Care: Some practitioners may recommend detoxification protocols, although it's essential to approach these with caution and consult a knowledgeable healthcare provider.
Therapies for Chronic Symptoms: If you experience chronic symptoms like brain fog, consider:
Cognitive Behavioral Therapy (CBT): To help manage anxiety and depression related to chronic illness.
Physical Therapy: To improve overall health and mobility.
Nutritional Support: A dietitian can help you with dietary changes that may support your recovery.
Finding the Right Doctors
Research Local Specialists: Look for doctors who specialize in environmental medicine or have experience with mold-related illnesses. Online directories and patient reviews can be helpful.
Ask for Referrals: Your primary care physician can refer you to specialists who are knowledgeable about mold exposure.
Support Groups: Connecting with others who have similar experiences can provide recommendations for healthcare providers who understand mold-related health issues.
Additional Resources
Environmental Protection Agency (EPA): They provide guidelines on mold cleanup and health effects.
Centers for Disease Control and Prevention (CDC): Offers information on mold exposure and health risks.
Conclusion
It's crucial to take mold exposure seriously and seek appropriate medical care. While it may take time to find the right treatment and support, there are healthcare professionals who can help you manage your symptoms and improve your quality of life.”

@ariza9110
Corrections: *additional (not addition) and mold (not mild). 😉

Thank you Susan! I read about this L-Lysine and I have it in my multi vitamin that I take twice daily. It only amounts to 400 mg. Is that enough or should I take an extra 100 mg. I don’t to the Vicks, but try to smell other things daily and still all I can get most mornings is a whiff or 2 of my coffee grounds. I taste nothing. Thanks for the suggestions. It is appreciated.

I traveled to see a doctor (naturopathic) doctor in Michigan as I developed symptoms of mono for three months that I could not get out of after a viral (CMV) infection. The iodine and lysine is his protocol. My primary physician will order the ioderal for me and checks my iodine levels. Originally, when I had the mono symptoms, my iodine level was checked and I was 20 points below the normal range (using Quest Diagnostics as the lab). If you are very sick from a virus (such as long term covid), it is worth a trial for a week to see what happens. You could always get off of the lysine and iodine. They are supplements that a persons body has. My family uses this remedy when we feel that we are coming down with a virus. All four in my family uses this-each had covid twice in six years-and it amounted to nothing but an occasional cough and a hard cold for one day.

By the way, the sniff/smell of coffee grounds is encouraging that your sense of smell and taste will come back. If you are hesitant about taking the iodine, try eating a pack of seaweed chips found in stores like Wegmans or health food stores daily. Each pack has about 1 oz of dried seaweed in it. Eat the whole pack. Try this for a week eating a pack each day. This also helped me recover from a frozen shoulder (Dx by orthopedic shoulder doctor). It stopped the severe pain which I think was caused from a virus too as there was no other injury.