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Daily...and I still fight

Posted by diverdown1 @diverdown1, Jun 15 8:18am

I am tired of waking up feeling terrible. Everyday, I wake up and feel the malaise and fatigue and I ask the Universe (my Higher Power) to help me get through another day. It is like the movie "Ground Hog Day," except that I am physically miserable. I take my morning medications, Vyvanse, Gabapentin, Cymbalta and drink a full glass of water mixed with Emergen-C. Within about an hour or two, I am able to function. I have to remind myself that I am still here and that I will feel better in a little while, for a little bit. I do have feelings of hopelessness, especially this morning because I felt so terrible. After I take my medication, I sit here and read what you all are saying and it helps me realize I am not alone in this. Thank you all for being here and although I do not know you on a personal, face to face level, we are connected.

Interested in more discussions like this? Go to the Post-COVID Recovery & COVID-19 Support Group.

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modernluxuries | @modernluxuries | Jun 19 8:32pm
In reply to @diverdown1 "I understand and I also appreciate everyone who posts here. I woke up feeling awful again..." + (show)
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I understand and I also appreciate everyone who posts here. I woke up feeling awful again today. After 3 years of this, I do the same thing every morning. I remember that I have to keep going. I have a brother with a mental illness that is living with my mother who has dementia. I feel overloaded and sometimes I can get that hopeless feeling, but I MAKE myself get up. I have 2 dogs and 3 cats and I have to get up and feed them and let the dogs out. I am living off of student loans as I am in an online program for my Master's degree in social work (online, thank goodness)...so, I must take the medicine that helps me function, first thing, sit quiet, ask the Universe to help me, read the updates on this page to see what is new or who is new and hope that it passes for a little while. It does. I take that and try not to think, "well, tomorrow is going to be like this too." That is difficult, but I know I am not guaranteed tomorrow. I must keep going. I have gratitude (even if for a second) that I know I could be in worse shape. It is a mind thing I do, but I do get so tired of feeling like this. Hope is important, at least for today. I appreciate all of you so much.

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It’s so important to remember that on those “bad” days where we feel the overwhelm, the constant fight and seemingly endless search for (more) care and answers/options - that we are human. As much as we would like to, we simply cannot control everything, but we can do our absolute best (whatever that is) on our “better” days, to move this crazy needle forward.

First and foremost , it’s for us - for our own health and wellbeing. It’s understandable to feel the emotions surge and for discouragement to creep on in. Acknowledge it. Meditate, pray, breathe and talk through it. Then, let it pass.
Easier said than done, I know. But it’s key to know that what we’ve been and continue to go through will naturally challenge us mentally to the core. We are, after all, waking up to and navigating our lives and world with this elusive invader… while at the same time, on the very beginnings of research. Which is why Community is so important and powerful.
My mind dump 😉🥰

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diverdown1 | @diverdown1 | Jun 20 7:57am

I have found a lot of support and comfort in this group. It is really the only place where people understand having Long COVID that I have found.

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diverdown1 | @diverdown1 | Jun 20 8:00am
In reply to @modernluxuries "It’s so important to remember that on those “bad” days where we feel the overwhelm, the..." + (show)
Profile picture for modernluxuries @modernluxuries

It’s so important to remember that on those “bad” days where we feel the overwhelm, the constant fight and seemingly endless search for (more) care and answers/options - that we are human. As much as we would like to, we simply cannot control everything, but we can do our absolute best (whatever that is) on our “better” days, to move this crazy needle forward.

First and foremost , it’s for us - for our own health and wellbeing. It’s understandable to feel the emotions surge and for discouragement to creep on in. Acknowledge it. Meditate, pray, breathe and talk through it. Then, let it pass.
Easier said than done, I know. But it’s key to know that what we’ve been and continue to go through will naturally challenge us mentally to the core. We are, after all, waking up to and navigating our lives and world with this elusive invader… while at the same time, on the very beginnings of research. Which is why Community is so important and powerful.
My mind dump 😉🥰

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Thank you @modernluxuries for your words of encouragement and understanding. That is why I love this group so much!

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