Palliative care?

That’s odd! I would call the office and ask. They should definitely discuss with you about the option first. It’s your choice- might be a mistake.

Hi @zeedee1. I agree with @leslie2121, that it is a bit odd to be referred to Palliative care without your doctor bringing this up during a discussion. Though, you do have an appointment in 2 weeks. So maybe this is something that is on their radar for you and because it can take time to get approval, sent the referral in early for you. They may have felt this care system might be really helpful for you in a broader scope. You can always decline after listening to what potential benefits it may provide for you.

Let me clarify by saying, don’t confuse palliative care with hospice care. Palliative care isn’t an ‘end of life’ program. This article will explain things better than I can:
From the NIH, “ Palliative care is focused on improving quality of life for people with serious illnesses and their care partners. It is available to people of any age who need it, not just older adults. The major elements of palliative care include managing a person’s symptoms effectively and ensuring that their care is coordinated.
Palliative care is interdisciplinary, which means that it involves multiple types of doctors and other care providers. These providers work together with patients and their families and care partners to ensure that the treatment plan reflects the person’s goals.” Full article here: https://www.nia.nih.gov/health/hospice-and-palliative-care/what-are-palliative-care-and-hospice-care

I’ve know many people who have been referred to palliative care when they have chronic illnesses to help them cope with all aspects of the illness.

Since your appointment with this doctor is half a month away, why not just give their office a call to find out?

Thank you all so much…. I know there is no cure for Waldenstroms but it is treatable. I feel very reassured..

Diagnosed Jan '25 MM. They assigned me a palliative care Dr I believe because it's "treatable not curable". Palliative can go on for years & years. The palliative Dr was very knowledgeable about my blood work and explained a lot to me. They can help you as much or a little as you want. I will see palliative Dr every six months or so.

Thank you so much. You are all a blessing

One day at a time... keep a list of questions you may have and ask away! Thankfully- my PCP, Oncologist, PA Oncologist and nurses at treatment are all willing to answer any questions I may have.

Still hard to believe this is happening- take it day by day and try to look at daily positives. 🙏🏻

Well said… none of it seems real🫶🏻

Very well explained. My wife’s hospital calls their department “Supportive Care “. They deal with alleviating pain, handling psychological distress, family and social needs, etc. Very helpful.

Thank you so much!