Anyone treated with Adstiladrin for BCG-unresponsive bladder cancer?

Posted by DAVID B. @davidpball, Jul 22, 2024

Does anyone have experience with adstiladrin for treatment of BCG refractive NMIBC?

Interested in more discussions like this? Go to the Bladder Cancer Support Group.

@vejan738

informed today that I need to pick up some meds to take so I can refrain from peeing too soon after instillation of Adstiladrin, Anybody know what that is?

Jump to this post

The drug they prescribed for me was oxybutinen It calms bladder spasms. I take it 2 hrs before procedure

REPLY
@scott232

The drug they prescribed for me was oxybutinen It calms bladder spasms. I take it 2 hrs before procedure

Jump to this post

they want me to take Gemtesa already 3 days before appointment

REPLY
@davidpball

I received a first dose of Adstiladrin on 7/26/24. Side effects during first 24 hours included fever, chills, body aches, and fatigue, which abated after 72 hours. I will schedule a blue light cystoscopy in about eight weeks to assess progress against NMIBC/CIS.

Jump to this post

just had my first dose 6/25/25. It took about 6 hours for all the side effects to come forward and and they came in HARD -4 days later still affecting me. I only lasted 20 mins after drug instillation, that was hard. So Sept will see with scope check brings

REPLY
Please sign in or register to post a reply.