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DiscussionAny one with Neuroendocrine tumors getting the shot once a month?
Neuroendocrine Tumors (NETs) | Last Active: Jun 24 2:03pm | Replies (168)Comment receiving replies
Replies to "That's amazing ! I feel very blessed an encouraged by this,The largest nodule in my lung..."
@annie12345
My largest was 2.6 cm and they destroyed it with microwave ablation 4 years ago and no regrowth. Surgical removal is the standard treatment but that’s not an option for me due to the number of nodules in all lobes. I will have two more troublesome nodules destroyed with cryoablation in September. I told him I wanted to enjoy my summer first. He said that’s fine because they are slow growing so we can walk not run in my case.
No one has ever mentioned chemo for my lung NETs so definitely get a second opinion from a NETs team before ever going that route. It is not treated the same way as common lung cancer. I like conservative treatment to preserve quality of life.
PRRT (google it) is targeted radiation thru an IV but you need to have somatostatin receptors and I don’t based on my DOTATATE scan. That seems to be more commonly used with GI NETs. Has anyone reading this had PRRT for typical lung NETs? I think it’s a pretty rough treatment.
You’re in my prayers as well.