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DiscussionPost Liver Transplant Recovery: Recipient just doesn't feel well
Transplants | Last Active: Jun 20 11:32am | Replies (23)Comment receiving replies
Replies to "How long after her surgery could she be left alone? I'm talking to my family and..."
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@nancyraine, I has a simultaneous liver and kidney transplant in 2009 at Mayo Clinic in Rochester. Prior to my transplant I had difficulty walking and needed to use a walker. After my successful transplant, I spent 7 days in the hospital. During that time I had physical therapy, and with the new organs, had lost most of the body swelling due to fluids, and was in a much improved condition. At Mayo, (I don't now how other facilities do it) the nurses taught me (and my husband) everything that we needed to know before I was discharged form hospital. This included satisfactory blood labs, and the protocol scans/tests of the new organs as well as sufficient information and directions about my medications, -and using the bathroom, showering, getting around, etc.
My 'dream' during the following 2 weeks that my husband and I spent in Rochester (Gift of Life Tarnsplant House) was to walk, unassisted, the 7 blocks to my final appointment. As luck might have it, it rained that day! However, I was ready/able to do it!
My 4th week post transplant was spent at our home in KY. I remember being weak, and tired. I needed frequent naps, My appetite was crazy and my previously favorite foods did not appeal to me. My husband was retired and easily available - if needed. After that, I became more independent while spending time at home resting and healing and being thankful. Remember this is a major surgery, so don't rush return to your normal activities.
By 4 weeks, the caregiver role becomes less demanding and is mostly needed to get you to/from any doctor appointments blood labs. Of course, anyone can transport you.
I realize that everyone's experince can be different, but I hope that my experince will give you a little bit less stress.
If you were to ask for my advice, here it is: * Take your medicines. *Have your transplant nurse's contact on speed dial. *Do what your doctors tell you to do! They know you and your condition. They will be your most energetic cheering team!
Be on the alert for an incoming virtual hug❤️