I am confused by what you say ... that PLCIS accounts for 5% of lobular cancers. PLCIS is not cancer. My breast surgeon said they still don't know if it's a direct pre-cursor of invasive breast cancer (if left alone). There is, however, a pleomorphic version of invasive lobular cancer. Is that what you are referring to? If so, that is different from PLCIS (a rare variant of the more classic LCIS) and is considered a risk factor for invasive lobular or invasive ductal cancer within one's lifetime (maybe more so ILC).
I'm wondering if genetic testing would help you decide. And are you pre- or post-menopausal? Personally, I would go for the bilateral mastectomy to avoid the meds, MRIs, and constant wondering! I've always been glad I did.
I am post menopausal and have been on hormone therapy for approximately 2 years. Although that is now coming to an end. Waiting on the genetic testing.
I am new to this and just saw this. Do you mind me asking what option you settled with? I am having to make the decision now and I am so lost I don’t know what to decide.
I think it is best to listen to the advice and trust your gut when making decisions going forward. There is no perfect answer because each case is different. Whatever you decide know that is perfect for you.
I think it is best to listen to the advice and trust your gut when making decisions going forward. There is no perfect answer because each case is different. Whatever you decide know that is perfect for you.
Thank you. I am 54 already done menopause have a strong family history of cancer just not breast. I don’t think I will be able to handle the stress every 6 months. I think I have decided on the mastectomy.
Thank you. I am 54 already done menopause have a strong family history of cancer just not breast. I don’t think I will be able to handle the stress every 6 months. I think I have decided on the mastectomy.
I have a diagnosis of multifocal LCIS...that means that there are two growths within the lobule BUT they originated from one site. So many types... if you get to look at your actual test results you should be able to see exactly what type (basically descriptions of what the tissue looks like) you have. If there is only LCIS, then I would imagine it is the classical presentation - linear cells.
Hello, I have just been diagnosed with LCIS. I am considering taking Tamoxifen but is terrified of the side effects. I read that a low dose tamoxifen of 5mg/day for 3 years is just as effective as 20mg/day in lowering my risk of breast cancer. Does anyone have any experience with low dose tamoxifen?
I was diagnosed with LCIS in 2024, they recommended me to take 20mg/day of Tamoxifen, but I started with 5mg/day because i was nervous about the side effects. I didn't have any side effects to that, but due to the fact that I had to cut the 10mg pill in half, I was concerned about losing the "dust" that happened when it was cut, so I am now takin 10mg/day for 5 years and have had no side effects. it has been a little over 5 months. Hope that helps.
I am thinking of doing ultrasound screenings following my preventative double mastectomy for LCIS. It has been 2 years since the mastectomy and I have told to just do periodic palpating of the chest wall and underarms as a way to monitor for abnormalities. Does anyone have any experience or inputs as to whether ultrasound can detect anything cancer related for someone like me with mastectomy without reconstruction?
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I am just so so confused!
I am post menopausal and have been on hormone therapy for approximately 2 years. Although that is now coming to an end. Waiting on the genetic testing.
Then more than likely it's the classic version of LCIS (CLCIS) - more common.
However your pathology report would be key here.
What did Mayo recommend? I have an appointment next thursday
I think it is best to listen to the advice and trust your gut when making decisions going forward. There is no perfect answer because each case is different. Whatever you decide know that is perfect for you.
Thank you. I am 54 already done menopause have a strong family history of cancer just not breast. I don’t think I will be able to handle the stress every 6 months. I think I have decided on the mastectomy.
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5 ReactionsThen that is a perfect choice with intelligent reasoning! Take care.
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3 ReactionsI have a diagnosis of multifocal LCIS...that means that there are two growths within the lobule BUT they originated from one site. So many types... if you get to look at your actual test results you should be able to see exactly what type (basically descriptions of what the tissue looks like) you have. If there is only LCIS, then I would imagine it is the classical presentation - linear cells.
I was diagnosed with LCIS in 2024, they recommended me to take 20mg/day of Tamoxifen, but I started with 5mg/day because i was nervous about the side effects. I didn't have any side effects to that, but due to the fact that I had to cut the 10mg pill in half, I was concerned about losing the "dust" that happened when it was cut, so I am now takin 10mg/day for 5 years and have had no side effects. it has been a little over 5 months. Hope that helps.
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1 ReactionI am thinking of doing ultrasound screenings following my preventative double mastectomy for LCIS. It has been 2 years since the mastectomy and I have told to just do periodic palpating of the chest wall and underarms as a way to monitor for abnormalities. Does anyone have any experience or inputs as to whether ultrasound can detect anything cancer related for someone like me with mastectomy without reconstruction?
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