ANA positive for Lupus

I have had lupus for over 25 years. It is mostly of the skin variety, and that means no sun, but it also affects my gut and makes me tired (and more). The tiredness has gone away with a Methylfolate supplement. It is crazy that it helps so much, but there is information out there that it can help.

Just getting rid of the fatigue would be great, no?

Note that the brand I take is Biotics Research Methylfolate Plus. I cut the pill into eighths (I have a great pill cutter) and it is not a mega dose. Check with your doctor to see if you can take it. I also take a B12 supplement as my gut doesn't like meat or fish anymore (and most other foods, but I have figured that one out) and I think it helps the Methylfolate work. Like Warner68 says, if you can figure out some accomodations for your condition, things can improve. Just Google the heck out of the topic and see what makes sense to try. Good luck!

I’ve already had most of the test that you mentioned. My doctor did say my thyroid is within normal limits. I did have the EMG test but they haven’t gotten back to me. My last glucose was 80. Which isn’t too bad. I tested positive for SLE. And my Ck was high as well. I do have all the symptoms for SLE and the connective tissue. My back is really bad. I have thoracic disorder with multiple level degeneration and endcap disorder. They said my bones are bone on bone which hurts really bad. My T9 and T10 is up against my spinal cord. With four bulging disc and the rest is just bone on bone. I am having a MRI on my brain and neck on the 20th of this month. I had a mini stroke where one of my blood vessels collapsed. I’m just a hot mess and I don’t understand how all of this happened all at once it seems like. Oh and thank you for the kind words!! You are right I should be able to enjoy my grandchildren and life. I get so depressed when I’m in pain and see other people my age enjoying life. But you know a lot of people have worse than me. So I just try to keep it all together and not let others see my pain.

Hi there .... I am 54 with 7 grandies and i totally hear you. I had a spur grow from C6 into my spinal cord and they had to remove it. Bone on Bone in so many places, total hip replacement and a cage in my neck. The only thing i find helps is Palexia Slow release morning and night... and i have fast release on stand by for those days we over do it or travelling etc. Fibromyalgia study shows Neck Trauma can cause your total nervous system to overload... think of it like this if someone else is cold I am freezing.... If someone else is tired I am completley exhausted..... every sensory touch, light, sound, goes crazy. Neuro Autoimmune they say comes from when i had Shingles, i also have lupus so given they all cross over I just throw my hands up in the air and never over do my days and have had to learn to say NO more often ... Wishing you all the best and take care

Yeah I have got to learn how to say no! I am a full time student and it’s been so hard on me going through this. I am worried that if something doesn’t change will I be able to work. Like am I doing all this schoolwork to never get to do what I want to?! I miss working out in my yard but I can’t bind over because of my back and I can’t be in the sun because it breaks me out and it’s too bright.