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Living with MDS (Myelodyplastic Syndromes)
Blood Cancers & Disorders | Last Active: Nov 8 6:57pm | Replies (234)Comment receiving replies
Thank you Lori. I will do my blood work next week to see if the white cells have come down. I will talk to my oncologist about my itching. I did a bone marrow biopsy so will get the results. I hope the CMML isn’t progressing. I also
Started a new medication my oncologist put me on for my kidneys. It’s called allopurinol. It could be that too that is giving me the hives.
Replies to "Thank you Lori. I will do my blood work next week to see if the white..."
Well I got my results back from my blood test and the hydroxyurea brought my white cells down my platelets are good and my red cell count is low I guess 88 but the results from my bone marrow biopsy came back that it had progressed fyy to I’m CmmL to AML. So my oncologist is meeting with the tumor board next week to discuss my treatment. She thinks I need to do chemo. The itching isn’t bad now since I have been taking loratadine. She talked about a drug called atarax if I still get itchy. I don’t know what yo think. I know AML is aggressive and whether the chemo will work. I feel much better on the hydroxy so I wonder why she just doesn’t leave me on that. Intake 2 500mg Monday yo Friday and 1 500mg Saturday and Sunday.
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I had low platletts and thought it was a drug interaction but my oncologist sent me for a bone marrow biopsy and they found two mutations, one with poorer outcomes, Since then, it is one of the conditions he follows me for.My impression is that it is so individual, one has to not try to see it in generalities. Every one seems to experience it in a different way.