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OMG. Yes yes yes so much the same. I was told by my pulmonary doctor that it might be DIPNECH but my oncologist does not say I have it. There are multiple tumorets but not growing. I still wonder if the different hospitals are correctly measuring them
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Replies to "OMG. Yes yes yes so much the same. I was told by my pulmonary doctor that..."
Well, it’s great that they’re not growing! Mine are stable also, but my only knowledgeable doctor is the surgeon at Sloan-Kettering who says I don’t need an oncologist and that I should follow up with my local pulmonologist. But that guy doesn’t know anything about NETs or DIPNECH. If I complain about any shortness of breath, he wants to give me an inhaler. But that’s not the problem I don’t think I need treatment now but I would like to hear somebody else say that. Know what I mean?
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For many years, my CT reports would include measurements of the largest few nodules. I liked that as it made it easy for me to monitor growth since I’m not seeing the scans. But they don’t do that at the university hospital. The radiologist just notes stability or in the impression. Does stability mean no growth or just a little growth? Since I have over 50 nodules, that’s probably overwhelming to the radiologist and hard to compare each one or notice new ones. I’m really hoping AI will be used on the scans soon as AI could compare and give measurements for every nodule in a heartbeat.