Lobular Breast Cancer: Let's share and support each other

I was diagnosed with stage 3 lobular 28 years ago after being told for 3 years that the lump was just a cyst since no cancer evident on mammogram. More women need to know about this cancer type & doctors need to be more aware too. After diagnosis I had mastectomy, chemo & radiation. Then participated in several clinical trials for estrogen blockers. It’s been rough, but I’m still kickin’! Stay positive, question your doctors, find a different one if you’re not comfortable (I did). You can handle this!

Here I go again, wondering if my extreme tiredness will go away. Had Lumpectomy 3 1/2 weeks ago. The morning is better in A.M and then continues to drop around noon. The worst happens from 2 p.m. Has anyone else experienced this and if so, how long. Please let me know, Thanks

Hi, I think fatigue is pretty common when undergoing any procedure. 3 1/2 weeks is not a long time. Take care and rest when you need to. Remember to drink lots of water.

Thank you

Are you on any medication now? How old were you when diagnosed? I declined chemo because I read that it is not effective for ILC. I also am stage 3 because of its size. I had lumpectomy and radiation. I am now taking anastrozole and verzenio and wondering how many years I have...

I was diagnosed with "invasive ductal carcinoma of no special type with lobular invasion pattern" (Stage 1, Grade 2, ER+ PR+, HER2 -, Oncotype score 6). I know this thread is about ILC, not IDC, but my question is... What is the difference between ILC and "lobular invasion pattern"? I have found differing descriptions, and I know that the pattern was enough to get the oncologist to prescribe an additional boost at the end of radiation, but I still am unclear as to the difference between this and ILC. Do I have both? Thank you! (and if this is more appropriately addressed in another thread, please let me know - thanks!)

Hello,

I am hoping to get some information on Lymphedema: 1. How typical (I will have at least 1/2 of my lymph nodes removed from armpit and clavical)? 2. Is there a normal timeline for onset? 3. Is it treatable? 4. Is it curable? 5. Has anyone done LDex assessment - thoughts? (it is not covered by my insurance and would likely run $10,000 in year one. 6. Preventative measures? Thank you all!

I was 49 when diagnosed. 78 years old now. Treatments have changed so much since I did treatment which was much more aggressive than it is now. I was on a clinical trial for letrezole ( I think related to anastrozole) and think that is used pretty commonly today. Science keeps changing and hope is always there.