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Ray Kemble avatar

"Looking forward." Has PN taken that away from me, too?

Neuropathy | Last Active: Jun 30, 2025 | Replies (75)

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Hello, chawk (@chawk)

Good to hear from you! We've had some similar experiences, haven't we? The way you described negotiating the stage reminds me of precisely what it's like, especially when I was doing my last few shows, before PN told me to stay at home and be content binge watching Yellowstone. I was especially reminded of the last time I was called to read against a few other actors (I'd already been cast as "Reynold, an elderly man") and, because I'd entered the auditorium from the lobby, I had to mount the stage from the auditorium floor via a moveable flight of plywood steps. I recall going up those steps ever so carefully, not wanting the director, who was sitting somewhere in the dark, to see me fall and think, "OK, sure, I've cast Ray as 'an elderly man,' but I was hoping he wouldn't be THAT elderly!" LOL

Good luck in re-upping for PT. "Re-upping" sounds like you're betwixt & between right now. That's the situation I'm in. I need to find a good therapist. By "good," I mean a therapist who's had some experience working with people with PN. I've gone through spates of PT in the past, long before I was diagnosed with PN, because of my "mysterious," worsening balance troubles. I'd gotten so used to working with therapists, all very sweet people, who'd tell me on Day 1 that they knew oodles about PN, only to demonstrate once our sessions got underway that their definition of "oodles" and mine was different. I've enough PT handouts here at home, given to me over the years, enough pages to represent the felling of a major forest.

As you might guess, I'm wondering do I want put myself through this again? Or do I want to put together my own D.I.Y. PT program? Each option has its pluses and its minuses. Work with an outside therapist: the plus, motivation! (and that's a BIG plus for me), the minus, the $$$ co-pays (not much, but still … ); a D.I.Y. program: the plus, no cost (and flexible hours), the minus, the need to self-motivate (oh, God!). So, what to do?

The quest for the "perfect shoe"? I was on that quest for years, long before PN (and I still am, to a degree, but far less so). I've decided –– in other to relax –– that there is no such thing as the "perfect shoe," not when you consider the gazillion varieties we have when it comes to feet; then you add to the mix the varieties of PN symptoms: it can become quite exhausting. Back in the days when I was hot on the quest I'd imagine myself as a kind of Capt. Ahab nailing a coin to the mast and calling out to his men, "A silver piece to the first man who finds the 'perfect shoe'!"

Just now I'm on the quest to find a perfect Wednesday. Here's wishing you one, too!

Cheers!
Ray (@ray666)

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Replies to "Hello, chawk (@chawk) Good to hear from you! We've had some similar experiences, haven't we? The..."

Hi Ray Kemble
I am using New Balance shoes with a wide toe box & found to be helpful for my foot comfort. I was diagnosed with PN 15 years ago &’it kicked with a vengeance in the last two years. Staying active has slowed the progress of the disease.
I belong to a Gym & use the equipment faithfully.