Hi, your story sounds like mine. I had right middle lobe removed October 2023 due to a malignant tumor. There were other smaller tumors in the same lobe which I believe is why they removed it instead of just removing the tumor. It was typical carcinoid, and I get scanned every six months. So far everything has remained stable. But was also diagnosed with DIPNECH, at the same time. I was treated and follow up with my surgeon at Memorial Sloane Kettering, and he referred me to a local pulmonologist. The problem is all of my other doctors don’t know much about NETs. Thankfully, so far, my only symptoms are some shortness of breath on exertion, which is not horrible, and a frequent clearing of my throat. I do not have the cough so many others have. I also have GERD which I’ve learned is also common. I generally feel pretty good, so have not pushed to get on treatments because I also hear about some of the side effects. But I do think I would feel better to be evaluated by a NET specialist to make sure they concur with what I’m doing. I have multiple tumorlets on other lobes, which so far have remained stable without any treatment. So I’m working on getting names of NET specialists to call, just to be safe. My MSK Dr says I’m very lucky and to go live my life and he’ll see me in 6 mos. I believe him, but when I mention any symptoms, he says go see my pulmonologist, and that doctor doesn’t really know about DIPNECH. So frustrating! Best wishes to you, I remember you are not alone.!