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Has anyone taken the targeted therapy osimertinib (Tagrisso)?

Lung Cancer | Last Active: Jun 20 4:07pm | Replies (148)
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Profile picture for tedvoelker @tedvoelker

I have been on it for 15 months and the only side effect has been a rash on my upper body. Energy level is lower but more likely linked to the lung cancer.

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Matthew K | @flusshund | Jun 19 7:51am

@tedvoelker, I'm glad to hear your only side effect has been a rash. I'm curious. Why do you think your lack of energy is related to the lung cancer?

I was diagnosed at stage 2b with the EGFR Exon 19 mutation in June 2018. It metastasized to my brain in 2020, which is when I started Tagrisso. I had a recurrence in my brain in 2024, which we eliminated with one more round of radiation. To me, and others I know, one of the biggest challenges of advanced stage lung cancer while also being older is determining what is caused by cancer and what is caused by age, activity level, weight, etc.

Again, glad to hear you're mostly side effect free!

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