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Repatha, side effects and what comes next?

Heart & Blood Health | Last Active: 5 days ago | Replies (80)
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Profile picture for tatiana987 @tatiana987

I am learning a lot on this blog. Thanks to all. I will now use the words and expressions that others use. I have taken 17 Repatha injections and then the back pain and some joint pain became too much and I quit. Repatha did lower LDL, but at a cost in side effects, Since quitting Repatha, these symptoms have gone away almost completely. I have no more back pain or random severe joint pain.

Other symptoms that I have may or may not be attributble to Repatha. I had several spells of light-headedness that sometimes ended in falls. Now that I am off Repatha, that is getting better and I am not sure why. Could somebody who understands medicine better than I please answer this question : if Repatha can be blamed for my light-headedness and fainting, what might be the mechanism of action? Could it be brain cells used to high LDL levels that with Repatha no longer have adequate fat to function right?

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Replies to "I am learning a lot on this blog. Thanks to all. I will now use the..."
Janell, Volunteer Mentor | @jlharsh | Jun 18 11:00am

Hi @tatiana987
Disclaimer 😀: This may be oversimplified and definitely not complete, and I do not necessarily understand medicine. I finally am at a place with a doctor I trust to know the science who trusts me knowing my body. He recommends to me what to do and I do it, a great partnership! Having said this, I approach things by first pinning down what I know about them then explore from there trying to keep them as simple as possible.

I understand the liver is part of our GI system and filters all kinds of things. I know Repatha works in the liver to help it get rid of cholesterol. I am learning about the gut-brain connection and that what happens in the gut affects so much more. I will stay tuned with you to learn more from others.

I believe you mentioned your light-headedness spells started since you have been on Repatha. Please correct me if that is not correct. Keeping a log of my systemic symptoms has helped me.

Do you notice a cycle of symptoms at all? Do you notice your diet or activity level makes any difference?

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