Start a shingles phn support group?

Posted by sarajmeyer @sarajmeyer, Jun 10 9:17pm

I have severe shingles PHN and would like to start a support group for it.

Interested in more discussions like this? Go to the Infectious Diseases Support Group.

I would be there - I have it too. I would love to hear how people are dealing with this.

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I think it is helpful to others who are going through a similar thing so I will continue to share without whining too much.
I always have a band of pain around my torso. The band never leaves me but I can distract it with aleve a ibuprofen. I was in bed for four months since December but now i do things daily but must rest frequently. It is worse at night.
On a positive note, my family is very supportive.

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@sarajmeyer

I think it is helpful to others who are going through a similar thing so I will continue to share without whining too much.
I always have a band of pain around my torso. The band never leaves me but I can distract it with aleve a ibuprofen. I was in bed for four months since December but now i do things daily but must rest frequently. It is worse at night.
On a positive note, my family is very supportive.

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Sara - I have that band also - along with the nerve pain and surface pain in that area. It is 4 weeks. The rash is going away, the pain is not. I was told not to take Aleve long term, it can cause intestinal bleeding, so yesterday I bought Tylenol. I take that along with the Gabapentin; it allows me to function. At night, to sleep, I take 300 mg of Gabapentin, and I sleep all right.
May we both - be pain-free one day.

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