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Ray Kemble avatar

"Looking forward." Has PN taken that away from me, too?

Neuropathy | Last Active: Jun 30, 2025 | Replies (75)

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Good morning, Barb (@bjk3)

I had thought that "purpose" might make for a good topic. After you've hung around this forum for a while, you realize that the majority of topics have to do with the nuts and bolts of PN –– shoes, meds, therapies, etc., and that's 100% to be expected –– while fewer topics have to do with the emotional impact of PN. What you and I think of when we hear the word "purpose" differs slightly. Your thoughts natural gravitate toward the spiritual, whereas mine rotate more around one's sense of self. For example …

… until PN, I could get up each morning and say to myself "my purpose is to act." I was able to finish the "I am a ______" sentence by saying "I am an actor." When PN came along, booting me from acting, I had a hard time saying "my purpose is to act." (Let's set aside, just for discussion's sake, the option I had –– and still have –– to act using a walker or wheelchair. Many fine actors do, and I may yet still.) So, if I felt like a fraud saying "my purpose is to act," what was I to say? "My purpose is to take pills"? "My purpose is to walk ever so carefully so I don't fall"? "My purpose is to get used to having PN"? Each of those has its place, but none seemed deeply satisfying, not in the long run of being alive and being conscious of being alive. Blame it on a swollen ego if you wish ( 🙂 ), but needed something grander, more triumphant, more contributory that just remembering to take my atorvastatin.

It seems that either way we're inclined –– the spiritual, or the self-assessing –– it's a matter of identity: how we see and understand ourselves, and how others see and understand us. And trying to finish the killer sentence: "I am a _____."

Oh, Barb, us and our PN. Ain't it somethin'? 🙂

Cheers!
Ray (@ray666)

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Replies to "Good morning, Barb (@bjk3) I had thought that "purpose" might make for a good topic. After..."

@ray666 ~
Oh, Ray, you've got that right. I hope you do take up that acting identity again. It would help others to see with their own eyes that physical limitations can't make you leave it until you're ready to let it go. I think acting is in your bones, like it is for my son-in-law who was able to utilize his talent at Second City in Chicago for season of his life. He's still so expressive, and for those of us who aren't, it is SO fun to observe! Sure, your parts may be shortened but you will look forward to that (both the acting and the shortness!) Just stay off ladders!

Blessings, Barb

Hi Ray. I am Fay. What is atorvastatin? Is it for neuropathy? Doctors told me nothing they can give me. I take Alpha Lipoic Acid purchased from Amazon and it helps with the burning pain. God Bless you.