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Mayo Clinic For Parkinson’s

Parkinson's Disease | Last Active: Jul 11 11:10am | Replies (33)

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Anyone who went to the Mayo Clinic from another state for Parkinson’s. Please tell me your experience?? Is it worth it ? Is it that extensive ? Do you feel it helped at all ?

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Replies to "Anyone who went to the Mayo Clinic from another state for Parkinson’s. Please tell me your..."

Hello @booplagirl3

It is a good idea to go to a Parkinson's Center of Excellence if you have a diagnosis of PD. Mayo Clinic is a Parkinson's Center of Excellence. The contact information for Minnesota, Arizona, and Florida can be found here http://mayocl.in/1mtmR63.

While I have not been seen at Mayo, other members on Connect have been there to confirm a diagnosis and/or to find a good treatment plan.

Are you seeking a second opinion for a correct diagnosis or to find better treatment plan?

I live out of state but see a doctor at the Mayo Scottsdale for PD. If you can afford the round trip air it’s worth it. Mayo is very well organized. I never stay overnight. The only downside is they are hugely popular and get booked up far in advance. But PD is not a 5 alarm fire disease. More like a creeping vine disease. So the onus of treatment is really on you. Through self care and PT. Meds. You can see your doctor occasionally and get PT for PD issues but it’s up to you to put it into daily practice. The reason I went to Mayo out of state is because I live in a major city and their services for PD suck. I don’t think the disease is a big money maker for doctors so you’re not gonna see widespread treatment centers for it. Just my opinion. Like my local neurologist, says “nobody dies from PD“. Having said that the best experts seem to be at Mayo for PD.