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Any one with Neuroendocrine tumors getting the shot once a month?

Neuroendocrine Tumors (NETs) | Last Active: 5 hours ago | Replies (137)
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@californiazebra

@annie12345
After you read thru all the posts, let me know what questions you still have. My 50+ lung nodules were discovered in 2008 but based on respiratory symptoms I’ve had lung NETs and DIPNECH for at least 30 years. Mine are typical carcinoids. Very very slow growing. I’m doing very well and you will too. You stated a small percentage of people have NETs in their lungs. I’ve read about 25% of NETs patients have lung NETs. Based on all the stories I’ve read, I would rather have lung NETs than GI NETs. Hang in there. I think you’ll feel better after reading through all the posts. Oh, and after having it for decades it is still contained in my lungs and hasn’t spread outside the lungs. Amazing.

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Replies to "@annie12345 After you read thru all the posts, let me know what questions you still have...."
annie12345 | @annie12345 | 12 hours ago

Thank you for your reply its encouraging to hear about your journey.Yes mine are typical nets to I think I may of mentioned that,I will have a look at those posts.It was my consultant who said only 5% of people have lung nets.Thank you so much for all this information I'm very new to all this still learning ..its took me all this time to look for some support as I didn't think I needed it,but it definitely helps to hear other people's stories that are going through the same.

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