← Return to Living with MDS (Myelodyplastic Syndromes)

Discussion
momz avatar

Living with MDS (Myelodyplastic Syndromes)

Blood Cancers & Disorders | Last Active: Aug 30 4:21pm | Replies (229)

Comment receiving replies
Profile picture for Lori, Volunteer Mentor @loribmt

Good morning, @jacklyn. Itching…I swear that can be worse than pain. Unfortunately it’s a lovely side benefit of some blood diseases…sarcasm duly noted. I had AML and got to the point where I could barely tolerate showers…before and during treatment. So you have my deepest empathy.

You’re not alone in this…though I know ‘misery loves company’ it doesn’t cure the itch! I found this discussion for you posted by @madhornet, who also has CMML and dealing with itching!
MDS-CMML-1: Anyone dealing with pruritus (itching)? https://connect.mayoclinic.org/discussion/mds-cmml-1-information/

Hopefully you’ll find some helpful information in the conversation. Did your itching become worse when your HU dosage was increased?

Jump to this post


Replies to "Good morning, @jacklyn. Itching…I swear that can be worse than pain. Unfortunately it’s a lovely side..."

It started before I started the hydroxy. They say it’s exama. I do have some pimples here and there but it’s at night that I feel
It worse. My pharmacist gave me loratadine but I am
Afraid it will
Interact with my venlaflacine and clonaplazine. I fell
Last November and fractured my L1and L5 vertebrae. The worst pain imdbervwdnt through. Ended up on morphine and went to thevER three times in pain. Went through a break through depression which was the worst. Then they found water around my heart so that had to be drained. I am
Hoping the hydroxy will shrink my spleen and lower my white cells snd the itching will
Go away. Pray for me. Please. .